Resource eBlast November 2017
Sharing Resources for Families of Children with Special Healthcare Needs
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The Family Voices Immigration Toolkit* is a collection of documents designed to inform, empower, and assist families of children and youth with special health care needs (CYSHCN) and the professionals who support them to prepare for the possibility of an emergent immigration situation and/or to collect supporting documentation that accurately reflects the extent of hardship on the health and well-being of a child with SHCN if s/he or the caregiver is detained or removed. This toolkit differs from others in that it uniquely addresses and supports the needs of CYSHCN in terms of the documentation, including specific templates for doctor letters and a documentation organization checklist. (*This toolkit is not intended to be legal advice.)
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For thousands of years - going back to Ancient Rome - society treated people with intellectual disabilities as if they were unable to take care of or make decisions for themselves. Today, it is still expected that someone else - usually called a guardian, but in California, a conservator - will be appointed to make decisions for them. In fact, that is often the advice parents get when their children with disabilities turn 18: become their guardian/conservator as soon as possible. It doesn't have to be that way. This paper is about your options and actions you can take to help your children make their own decisions and direct their own lives to the maximum of their abilities.
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