For Ependymoma Awareness Day
, we encouraged our community to participate and create Ependymoma Awareness Day activities from their home and share those activities with others. We adopted the mindset, Create and Connect, to inspire the virtual activities. Create ependymoma awareness and connect our community to resources and each other. Our community purchased over 150 t-shirts, colored and displayed their own butterflies using chalk or our coloring sheet, created origami butterflies, and donated
to the 2020 Ependymoma Awareness Day campaign. View the photo gallery
We released inspiring videos from members of the ependymoma community all day on May 3 from 9:00 a.m. to 9:00 p.m. on the CERN Foundation Facebook page
. There were over 15 videos from our community featuring families and CERN advisors from all over the world. One of these videos included a live butterfly release from Kimberly Wallgren, President of the CERN Foundation. “Our stories unite us despite our differences. Regardless of our age or diagnosis, we share similar hopes and dreams when it comes to our future and the future of our loved ones,” shares Kim. We were able to reach over 30,000 views and made numerous connections and relationship interactions between members of our ependymoma community.