Awareness Starts with You

Image. Read more about Jennifer's experience with Ependymoma.

Ependymoma survivor, Jennifer, shares the importance of awareness and how internal awareness is step one. Jennifer writes “Awareness began for me when I began to worry about what felt like a little fire inside my left temple.” Read her second Ependymoma Community Blog entry titled 'Awareness Starts with You' to learn more about her personal experience with awareness.

Read Jennifer's story.

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NCI-CONNECT Survivorship Care Symposium

The CERN Foundation and the National Brain Tumor Society are proud participants in the Survivorship Care in Neuro-Oncology Symposium hosted by NCI-CONNECT. The symposium is an opportunity to create a forum for neuro-oncology health care providers, researchers, patient advocates, patients and care partners to learn and discuss the challenges experienced by persons living with central nervous system tumors. The symposium goals include developing survivorship care guidelines for the medical community and a research agenda focused on the gaps in CNS tumor survivorship care.

Learn more about NCI-CONNECT survivorship coping and support resources.

An image of all presenters in the PNOC 2021 Ependymoma Informational Webinar.

PNOC 2021 Ependymoma Webinar

The PNOC 2021 Ependymoma Informational Webinar offers patient families and pediatric brain cancer advocates to hear directly from PNOC doctors from multi-institutions about the latest findings, current state of research and clinical trials for pediatric ependymoma brain tumors. The distinguished panelists are leaders dedicated to improving the outcomes of those affected by this disease. Also joining the panel is a patient family sharing their family’s journey. This webinar was recorded on May 21, 2021 as part of the PNOC webinar series for specific tumor types.

Watch the webinar now.

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Under “Direct My Gift to Support,” remember to select the Ependymoma Research and Education Fund.

Make A Gift

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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CERN Foundation PO Box 217 | Zionsville, IN 46077 US