Building Bridges to the Future |
Family Conference • UCD Symposium • Research Opportunities • Community Events
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Even though registration for the 2026 NUCDF Family Conference in Memphis is now closed, you can still take part in one of the weekend’s major events. Join an exciting day of learning and collaboration by registering for the free virtual Urea Cycle Disorders: The Rhythm of Progress Symposium on Friday, July 17, 2026.
Hosted by Dr. Andrea Gropman of the Pediatric Translational Neuroscience Initiative (PTNI) at St. Jude Children’s Research Hospital, in collaboration with the Urea Cycle Disorders Consortium (UCDC) and the National Urea Cycle Disorders Foundation (NUCDF), this full-day symposium will bring together experts from across the UCD community to share the latest advances in research, clinical care, and emerging therapies.
The symposium is designed primarily for clinicians, researchers, trainees, and healthcare providers working in rare disease and urea cycle disorders. Families are welcome to attend virtually and gain insight into the scientific progress shaping the future of UCD care. Please note that presentations will be primarily scientific and clinical in nature and may include technical language.
Throughout the day, attendees will hear presentations highlighting:
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- Innovative research and scientific discoveries
- Novel diagnostic strategies
- Emerging and future therapeutic approaches for UCDs
- Advances in UCD care and management
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This is a valuable opportunity to hear directly from leading experts, learn about the latest developments in the field, and stay connected to the progress being made on behalf of individuals and families affected by urea cycle disorders.
We hope you will join us virtually as we continue building momentum toward a brighter future for the UCD community.
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TOGETHER WE CELEBRATE INTERNATIONAL ARG1 DAY
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On International Arginase 1 Deficiency (ARG1-D) Day, the National Urea Cycle Disorders Foundation (NUCDF) proudly celebrates alongside the ARG1 Foundation and the entire ARG1-D community.
This year marks a historic milestone with the FDA approval of LOARGYS® (pegzilarginase), the first approved therapy for ARG1-D. This achievement reflects the dedication of patients, families, clinicians, researchers, advocates, and industry partners who never stopped pushing for progress.
While we celebrate this extraordinary accomplishment, we remain committed to advancing research, improving diagnosis, expanding newborn screening, and ensuring access to care for every individual living with ARG1-D.
Thank you to the ARG1 Foundation for your partnership, leadership, and unwavering commitment to the community. Together, we are creating a brighter future for families affected by ARG1-D.
Happy International ARG1-D Day!
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CONNECT WITH THE GLOBAL CITRIN COMMUNITY |
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The Citrin Foundation is hosting an upcoming virtual patient gathering, bringing together individuals and families affected by Citrin Deficiency from around the world.
Whether you are newly diagnosed, a longtime member of the community, or a caregiver seeking support, we encourage you to participate.
We are grateful for the Citrin Foundation's ongoing efforts to support, educate, and connect families affected by Citrin Deficiency.
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SAVE THE DATE 12th Annual Cure the Cycle Challenge
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October 10, 2026 | Napa Valley, California & Virtual
Join us for the 12th Annual Cure the Cycle Challenge as we come together to advance research and create hope for individuals and families affected by urea cycle disorders (UCDs).
This year's event will support the Cindy Le Mons Fellowship Grant, helping fund innovative research and the next generation of scientists working toward better treatments and a cure.
Whether you ride with us in Napa Valley or participate as a Virtual Rider, every mile and every dollar raised makes a difference. The fight against UCDs is not limited by geography—together, we are driving research forward and creating a brighter future for our community.
Save the date and stay tuned for registration details coming soon.
Together, we ride toward a cure.
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PARTICIPATE IN UCD RESEARCH
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