10-year NET survivor finds health and balance. New 100-page patient guide.
10-year NET survivor finds health and balance. New 100-page patient guide.
Grandmother with grandson watering roses

Spark Hope—a $10 Million Campaign for NETs 

NET Research Foundation has launched a $10 million fundraising campaign, the largest of its kind in our history. Every gift we receive will be MATCHED, doubling our ability to fund researchers whose work can identify the causes of neuroendocrine cancers and lead to improved treatments for NET patients. (MORE)
Donate Now

Searching for the Next Breakthrough

NETRF’s Spark Hope campaign is important because we do not know where the next NET breakthrough will be found. We need to invest research dollars strategically to advance those areas that are most promising. And we need to continue to support those scientists whose work advances our knowledge of NETs. Our work will not be done until every person with a neuroendocrine tumor has a cure and the opportunity to live a full and long life. (MORE)

Finding Hope and Inspiration

That’s it—my number is up, Dave McCoy thought when he learned he had neuroendocrine cancer in 2008. A cancer, he says, that no one knew anything about. “Even the surgeons were saying, ‘I don’t know. We don’t know what to do with this thing.’"
Dave now shares his cancer story to show what's possible in life beyond neuroendocrine cancer and to inspire others to be part of the search for the cure. (MORE)
Link to video profile of Dave McCoy

Killing Single Cancer Cells

Can a Novel Radionuclide Prevent Metastasis? 

It's important to eliminate as many cancer cells as possible during treatment because they can grow and cause a cancer recurrence. That's the thinking behind a NETRF research study of a new radionuclide for PRRT, a targeted form of radiotherapy. A researcher in Switzerland is the only one in the world working to develop Tb-161 in hopes of being able to kill single cells to prevent metastasis. See how this NETRF research may help us to "get it all" and reduce the risk of recurrence.  (MORE)
Link to Dr. Schibli video

NCCN® Releases NET Guidelines for Patients

The most-respected publisher of evidence-based guidelines for oncologists has just released a 100-page booklet for patients. It offers readers insight about NET treatment options and when evidence suggests they may be most effective. See where you can access this essential guide. (MORE)

Accelerator Investigator Named to National Academy of Medicine 

NETRF Accelerator Award investigator Matthew Meyerson, MD, PhD, has achieved one of the highest honors in health and medicine —being elected as a fellow of the National Academy of Medicine — for his discovery of the EGFR mutation in lung cancer. Dr. Meyerson is currently using the most advanced technology available to look for genomic causes of small intestinal NETs. (MORE)
Education & Advocacy
Women in audience smiling at presenter

Leading Experts Discuss Latest Tests & Treatments

Join us in NYC on December 1

We are planning a full-day free patient and caregiver conference on Saturday, December 1st in New York City.  We'll be offering information about the latest FDA-approved treatments for NETs, imaging methods that reveal crystal clear details of NETs, and hands-on suggestions for managing day-to-day side effects of treatments and syndromes. Don't miss our last event of the year.  (MORE)
Black women in exercise clothing hugging

YOU FIRST! A Guide to Caring for Yourself 

Living Well with NETs: Exercise & Empowerment

Amanda Woods and Maigenete Mengesha, Wellness House, Chicago, speak to the barriers stopping you from taking your health to the next level—the ones you admit to and the ones you don't:
  • The top 10 obstacles to exercise
  • Dealing with cancer-related fatigue
  • Getting connected: don't live your cancer journey alone
  • Forgetting to live your life
Take 18 minutes to watch their presentation now. (MORE)
Man sneezes with spray of droplets

Staying Safe in Flu Season

Living with cancer increases your risk for complications from the flu. If you have cancer now, have had cancer in the past, or live with someone who has a cancer history, it’s important to protect yourself and your family from the flu.  (MORE)
Get Involved

Foley Joins Board

We are proud to welcome Brendan P. Foley, Jr. as the newest member of the NET Research Foundation Board of Directors.  "I decided to get involved because I wanted to be part of the solution," said Foley, CFO, Red Roof Inn. "By contributing my time, I hope to improve funding and research for this disease." (MORE)

Online Auto Marketplace Supports NET Research

The Neuroendocrine Tumor Research Foundation (NETRF) gratefully received a $35,000 donation for NET research from the CarGurus Charitable Giving Fund. NETRF was nominated by a CarGurus employee to receive a grant and this grant was one of the first given by the recently established CarGurus Charitable Giving Committee. (MORE) 

Upcoming Fall Fundraisers

2nd Annual Benefit Breakfast
North Yarmouth, ME
October 27, 7 -10 am
Sponsored by North Yarmouth Fire Company
D.C Walk for Carcinoid Cancer 
Quincy Park, Arlington, Va
November 10, 10 am
Sponsored by eGlobalTech

Completed Fall Fundraisers

Thank you!

Join us in recognizing the organizers and participants of these events, which raised money for NETRF in the last month. 
9th Annual Moonlight Walk
Palo Alto, California
Biking for Debi
Ashland, Maryland to York, Pensylvania
Dean Paras Memorial 5K
Hunting Valley, Ohio
Schnurbusch 5K Run
St. Louis, Wisconsin
Learn how to create your own fundraiser. (MORE)

This eUpdate is supported by Entrinsic Health Solutions.


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NET Research Foundation
321 Columbus Avenue, Suite 5R
Boston, MA 02116

(617) 946-1780 | info@netrf.org
The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.
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