NET vaccine? Meet a patient on a NETRF-funded vaccine trial.
NET vaccine? Meet a patient on a NETRF-funded vaccine trial.

12 New Research Projects Approved

$3.5 Million in New NET Research to Advance Treatment

The Neuroendocrine Tumor Research Foundation (NETRF) today announced $3.5 million in neuroendocrine tumor (NET) research grants to fund 12 projects around the world in pursuit of more precise treatments for the estimated 171,000 Americans living with NETs.
This round of funding features multiple new fronts for NETRF. The Foundation granted two inaugural Mentored Awards for early career scientists, one of which was funded by a grant from Ipsen. There were also new areas of inquiry. For the first time, NETRF is funding pheochromocytoma and paraganglioma research and will evaluate a novel radiotracer for imaging adrenal NETs. Additional studies will explore new approaches in immunotherapy and targeted therapy. (MORE)

You Did It!

You made this research funding possible 

The 2,300+ gifts you gave in 2019 have been invested in promising NET research around the world. NETRF raised nearly $4.8 million in 2019 and funded a total of $4.77 million in research. With your generous support, we surpassed our fundraising goal. Look at what you accomplished in 2019. (MORE)

Your support plays a vital role 

NETRF funds innovative proposals that would never be considered by larger cancer organizations or government agencies, such as the following study of a neuroendocrine cancer vaccine trial NETRF funded. Also, your dollars go farther when NETRF-funded research generates data that can be used to secure funding from larger-scale institutions, further increasing meaningful active research. Thank you for giving.    

Vaccine for NET?

Study explores new ground 

Scientists at Roswell Park Comprehensive Cancer Center, Buffalo, NY, are testing an experimental brain cancer vaccine, called SurVaxM™,  in NETs. The pilot project, funded by NETRF, will test the safety and side effects of SurVaxM in ten participants who meet study criteria. The treatment targets a molecule made by some NET cells, called survivin, to trigger an immune response. Tests will help researchers learn whether SurVaxM helps the body recognize and attack NET cells. (MORE)

Research Grants Available for Scientists

Submit Letter of Intent by March 9, 2020

NETRF has released its 2020 request for applications. We invite transformative basic, translational, and clinical research applications with the potential to advance our understanding of neuroendocrine tumors and their treatment. Grants range from $100,000 to $1.2 million, with specific awards available for early career investigators.  (MORE) 

Red Roof® Room in Your Heart

When you book a room, we get a gift. 

Red Roof is sharing the love with NETRF in February. When travelers book a stay through February 29th using promo code "VP 627380" at any Red Roof Inn, Red Roof PLUS+®, or a Red Collection® property, they will receive a 10% discount on the room rate and in turn, the company will donate 2.5% to NETRF. 
"NETRF thanks Red Roof, and its guests, for helping us to fund essential research to improve diagnosis and treatment of neuroendocrine cancer, which is uncommon and often misdiagnosed," says Elyse Gellerman, CEO, NETRF. (BOOK HERE)

Celebrated Chef Openly Shares His Journey with Pancreatic Neuroendocrine Cancer  

Last weekend, the Twin Cities' culinary community honored Chef Jack Riebel with a 2020 Charlie Award for Outstanding Chef. This award meant a lot to the former James Beard Award nominee, who has cooked at the most esteemed restaurants in Minneapolis and St. Paul, because it comes from those who know him best. The news about the legendary chef's neuroendocrine pancreatic cancer diagnosis spread like a grease fire through commercial kitchens. With the acute phase of his treatment behind him, Chef Jack is celebrating and enjoying the next chapter of his life. (MORE) 

Podcast Discusses Surgical Treatment

The newest episode of NETRF's NETWise podcast addresses two common treatments for neuroendocrine tumors: surgery and interventional radiology. Listen in as we explain surgical debulking, Whipple procedures, and minimally invasive treatments for liver metastases.
We cover a lot of ground and offer helpful downloadable handouts that make it easier to talk to your doctor about treatment options. Check out the NETWise handouts for:
Plus, you'll hear from two patients who underwent surgery talk about how they evaluated their options with their doctors. Improve your understanding of surgical treatments today by listening to this episode of NETWise. 
Listen Now

2020 Bay Area NET Patient Conference

March 8, 2020
The Frances C. Arrillaga Alumni Center
326 Galvez Street
Stanford, CA 94305

Learn more about NET diagnosis, treatment, and research at this full-day conference featuring experts from Stanford, UCSF, and other institutions from around the world. This conference also allows patients and caregivers to connect with other NET patients and caregivers. It provides a rare opportunity to speak with physicians through Q&A sessions and roundtable discussions. NETRF is proud to continue its support of the annual Bay Area Conference. Register and read more about the conference here. (MORE)

Easy-to-Understand Guide to NETs for patients and families

Order a free copy of this helpful 64-page guide to neuroendocrine cancer. The publication lays the groundwork for newly diagnosed patients and serves as a handy reference for survivors. Packed with illustrations, definitions, and fast facts, this neuroendocrine cancer guide is the ideal starting point for the person who wants to play an active role in their care and learn to manage their symptoms at home. (MORE)

Rare Disease Day 
February 29, 2020

Follow along as we recognize Rare Disease Day later this month. Look for us on Facebook (@NETRF) and Twitter (@CureNETs). We'll be posting educational and outreach materials for you to share with your social networks to increase awareness and education of NETs. (MORE) 
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Contact Us

NET Research Foundation
31 St. James Avenue, Suite 365
Boston, MA 02116

(617) 946-1780 |

The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.

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