L-R: NETRF Board President Todd Gilman, Petersen Foundation trustee Gigi Carleton Schubeck and her husband Joe, Petersen Foundation attorney Jeff De Francisco and Petersen Foundation trustee Kevin Strauch with his wife, Ann.

A Celebration of Gratitude and Hope

NETRF celebrates the transformational support of

The Margie & Robert E. Petersen Foundation

The NETRF team hosted a celebration of the Margie and Robert E. Petersen Foundation and its significant contributions to NETRF over the years on September 22. The event was held at the remarkable Petersen Automotive Museum in Los Angeles and the guests included representatives of the Petersen Foundation, NETRF donors, scientific grantees and leaders, and Board members.

Named for the automotive and publishing giant Robert E. Petersen and his wife, Margie, the Petersen Foundation has given NETRF a total of 25 million dollars since 2015 to fund brilliant researchers dedicated to discovering improved treatments and cures for neuroendocrine cancer. Robert E. Petersen died from neuroendocrine cancer in 2007. Directors Kevin Strauch and Gigi Carleton Schubeck, and attorney Jeffrey De Francisco attended the reception. Gigi Carleton Schubeck told the group that the Petersen Foundation trustees are impressed with NETRF’s growth and broad-based approach to supporting NET research. She happily noted the Petersen legacy will live on now that NETRF’s annual research symposium is being named the Margie and Robert E. Petersen Neuroendocrine Tumor Research Symposium.

NETRF has funded research in seventeen states and fifteen countries since we began in 2005, thanks to the Petersen Foundation and all of our donors who understand the critical need for more NET research. Elyse Gellerman, NETRF CEO, thanked the Petersen trustees for helping NETRF to rally our community, spark hope for those with NETs, and continue our mission of funding vital NET research. NETRF Board President Todd Gilman reflected on the tremendous growth in research funding as a result of the relationship with the Petersen Foundation and he asked that everyone continue to support NETRF and build our community.

NETRF Researcher Dr. James Bibb publishes paper connecting faulty metabolism and adrenal cancer

University of Alabama at Birmingham's Dr. James Bibb recently published his NET research findings in the prestigious journal Cell Reports. Dr.Bibb and first author Priyanka Gupta, Ph.D, have deciphered a signaling cascade through which inborn errors in metabolism provoke deadly neuroendocrine tumors in the adrenal glands.

“This paper represents a major advance in our understanding of this recalcitrant form of cancer,” Bibb said. “It also advances our understanding of how alterations in metabolism drive cancer and hopefully will allow us to bring forward more effective treatments.” Bibb is a professor in the UAB Department of Surgery, and Gupta is a research scientist in the O’Neal Comprehensive Cancer Center at UAB.

Dr. Bibb is the recipient of a NETRF Petersen Accelerator Award for his research on a novel model of pancreatic NETs.

Read the UAB news release here.

NETWise Podcast Episode 21: The New Normal

For our latest episode, we’re doing something a little
different. We’ve spent a lot of time in this series talking
about the science of NETs, but your cancer journey is not just about biology.

Living with NETs can be an intensely emotional experience, and learning to deal with that emotional rollercoaster can be just as difficult as treating the disease itself. Listen here.

KNOW YOUR NETs: Scan Tips

Thanks to KNOW YOUR NETs Conference attendees for your feedback! Of those responding to our post-conference survey, 93% rated this conference as outstanding or very good compared to other NET conferences or online webinars. If you missed KNOW YOUR NETs, you can watch the entire conference recording. In this presentation, Dr. Carla Harmath of the University of Chicago explains How to Read Your Radiology Reports.

Your NET Story Matters!

If you are living with or loving someone with NETs, we know your journey, your story and your fight are very personal. The NET community is as special and as unique as the disease is rare. Sharing and connecting makes a community. Sharing your NET story has benefits; It can be therapeutic for you, your story may connect with others living with NETs and it promotes awareness and understanding of NETs.

NETRF produces the NETWise podcast to provide information and make the NET journey less challenging and isolating. NETWise is here to help patients and caregivers navigate the world of NETs.

We are working on some special topics and have a call to action for our NET community. Some of the future topics we are working on are: Parenting while living with NETs and Women and NETs.

If you are living with or loving someone with neuroendocrine cancer, want to share some of your NET story and are interested in participating in our NETWise podcast, please contact our Director of Patient Education, Jessica Thomas, LCSW at jessica.thomas@netrf.org or (617) 946-1782.

You are never alone!

Brittany (seated) with family and friends

The CureNET Project hosts first annual golf tournament

$30,000 of raised funds to be donated to NETRF

The CureNET Project hosted its first annual golf tournament to raise funds for The CureNET Project’s mission: funding neuroendocrine tumor research and providing financial assistance for those fighting NETs.

The wildy successful, sold out tournament hosted 160 golfers and raised nearly $40,000.

Founded in April 2022 by Brittany Holzhauer and her family after Brittany was diagnosed with pNETs, The CureNET Project raises money to fund NET research, raise awareness about NETs and to assist other families in the NET community who are fighting the same fight.

Read more about Brittany, her family and their fierce commitment to The CureNET Project here.

Wayne, Alana & Shay Firsty

Firsty Family Finishes Strong in 12th Annual Moonlight Walk to support NETRF.

Beginning at sunset and finishing as the moon took to a full sky, The Firsty Family, along with their devoted friends and family, completed their 12th annual Palo Alto Moonlight Walk in memory of their beloved wife and mother, Julie Seltzer Firsty.

The walk is a tradition that dates back to 2009 when Julie was able to participate and help raise awareness about neuroendocrine cancer.

"Julie went above and beyond partaking in numerous research trials,” said her husband, Wayne. “So, we will continue to do no less to help NETRF find a cure.”

The 2022 walk surpassed the family's goal of raising $6,000, and over the past 12+ years, the event has raised more than $80,000 for NETRF. "We found knowledge, hope, and kinship through NETRF, and if our fundraising efforts can augment and support that outreach for other NET families, then that is all the gratitude we need," said Wayne.

Thank you to the Firsty Family and their community for their continued dedication to supporting NETRF.

Special thanks to Advanced Accelerator Applications and IPSEN for sponsoring this E-update

DONATE

The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.

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