Dear Community Voice Member,

This May, Community Voice is proud to recognize Asian American, Native Hawaiian, and Pacific Islander (AANHPI) Heritage Month and celebrate the contributions, achievements, and diversity of the AANHPI CF community. This celebration aims to highlight the legacy of family, friends, and allies within the AANHPI community and celebrate the diversity within the CF community and Community Voice membership.

May is also CF Awareness Month and we remain dedicated to increasing the visibility, awareness, and amplifying the voices of the CF AANHPI community to inform CF Foundation programs, initiatives, and research. We are committed to hearing from all people with CF and their families.

“I've proudly identified as Asian after Hawaii gave me the context to come to terms with my mixed heritage, but that created a blind spot as we ventured into IVF after my wife's transplant since it was assumed that people of Asian heritage were unlikely to be CF carriers. Sharing our story has helped others avoid our missteps, and why I feel it's so important for the CF community to continue to advocate for ourselves and support each other to make progress. The happy ending to our story is that my CF-post-transplant-wife carried our son - herself - to a full-term pregnancy, and our carrier-only son is now a wonderful, healthy, 8-year-old!” 

 - Michael Dun, a Community Voice Member 

“The only way to amplify our voices and be heard is by sharing our perspectives and experiences with our community. If we aren’t sharing what we go through, no one will know, and nothing will change. We need to hear more voices from the AANHPI population to get a more holistic view of how CF affects us as a group. The only way to make an impact is for all of us to contribute, share, and most importantly listen, so we know where to begin and which direction to go! Community Voice gives us an opportunity to do just that. Please join us in sharing your experiences because we can’t do it alone, but as a collective we can make a huge difference.”  

- Sary, Beckett, and Chad Salyer, Community Voice Members 

We encourage you to read this blog post from a Community Voice member to learn more about the AANHPI CF experience:

• What It’s Like to Have CF in Pakistan by Raheema Arbi 

If you are interested in sharing your story, fill out the CF Community Blog interest form! 

We invite you to use this month to recognize and celebrate the diversity of the CF community. We hope these stories prompt reflection and conversations with your families and loved ones. 

Warmest regards, 

The Community Voice team 

May is CF Awareness Month

Every May, the CF community gathers to enlighten others about the disease, share unique experiences and personal stories, and unite behind our mission to find a cure for all people with CF. This year's campaign theme is “More Than a Lung Disease,” to highlight that while CF is primarily considered a lung disease, it can also impact everyone differently depending on factors such as age, disease severity, and mutations.

Please join others and post your CF story, unique experiences, and so much more on social media using the hashtag #CFAwarenessMonth and follow along as we share your stories throughout the month. For even more ways to get involved, visit our resource page on cff.org.

Invite others to join Community Voice by sending them to cff.org/get-involved/Community-Voice.

For questions or concerns, please contact the CF Foundation's Community Partnerships department at communityvoice@cff.org.

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