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Ependymoma Awareness Activities

Awareness Day

CERN Community Presents at Ependymoma Awareness Day 

Members of the CERN community gave these remarks to patients and caregivers at the Bracewell law firm during the National Brain Tumor Society’s Head to the Hill event, followed by the butterfly release.

Ian Shares His Story

At age 11, Ian is sharing hope to the world and to those battling ependymoma that need an inspiration.

Ian says, “I don’t remember the day they discovered my brain tumor, but my mom says it’s a day she will never forget. It was Mother’s Day and I was only 15 months old. My surgery began. I died for a moment, but as you can see... I fought back. I had a bigger plan of my own.”

Neuro-oncologist and Ependymoma Survivor Shares Her Story

After Zsila was diagnosed with grade II ependymoma in 1994, she decided to give back and become a pediatric neuro-oncologist.

Zsila says, “We are all here together because we’ve been through this journey together. I may be a pediatric neuro-oncologist, but I have something in common with you. I was in your shoes. I had a brain tumor myself - an ependymoma.”

Kimberly Encourages the Brain Tumor Community

Kimberly, President of the CERN Foundation, shares the importance of community.

Kim says, “We are all doing our best and trying to play our part in this group. So maybe tonight you have some extra hope to share or maybe you are in need of a little bit more. You are in the right place. Find confidence in the role you have and know that no act or contribution is too small.”
EAD Outreach

Ependymoma Community Gets Involved

In a groundswell of international support, patients, caregivers, professionals and advocates participated in a variety of events marking May 5, 2019, as Ependymoma Awareness Day. On a local level, many chose to participate in activities to create awareness about ependymoma where they live.

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