In 2022 on Ependymoma Awareness Day, the CERN Foundation welcomed ependymoma patients from around the country to join a Zoom support call and share their stories. Tiffany M., an ependymoma patient who was diagnosed in 2014, participated in the call. As a mom to seven, her days were spent homeschooling her kids, taking kids to extracurricular activities, doing projects, and visiting friends. All of a sudden, life changed completely. Her faith and family were the two driving forces behind her “must keep moving forward attitude” in those early days.
For many, a cancer diagnosis can be a lonely experience. With a rare disease, it can seem like no one truly understands what the patient is experiencing. Events like Ependymoma Awareness Day can help foster community when people need it the most, creating a welcoming space for individuals to exchange stories and form lasting bonds as members of the brain and spinal cord tumor community.
Join patients like Tiffany, care partners, friends, and family for Ependymoma Awareness Day this year on Wednesday, May 10, in our Virtual Community Gathering starting at 12 p.m. ET.