Childhood Cancer Awareness Month
Childhood Cancer Awareness Month
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 Childhood Cancer Awareness Month

September is Childhood Cancer Awareness Month. The CERN Foundation is proud to support children and care providers through awareness activities, referral support, education, and supported research efforts. In this edition, we are highlighting a few ependymoma parents who share their knowledge to help other families and how you can take action to fund pediatric research. Please join our effort to raise awareness by sharing this email with family and friends, submit your own inspiration story online, or join our Facebook page to stay connected.

What advice do you have for ependymoma parents?

We asked our community to share their advice for other ependymoma parents. Read their advice.
Find Support
Don't be afraid to ask for help. Utilize the resources available to you - support groups, a CaringBridge site to relay accurate information quickly to loved ones, offers from friends or family for meals or help with other children, meals, household, etc. People who care about you aren't going to know what to do or say, but if they offer to help, let them - it will be good for all of you.  
Seek Out Knowledge
Research your hospitals and doctors and choose wisely, but never second guess the decisions you make.
Ask as many questions, as many times as you need to.  
Let the docs be your Google.
Take One Day at a Time
It’s very easy to get overwhelmed with everything that’s coming at you. I had to constantly remind myself that this journey is a marathon, not a sprint, and to take it one day at a time.
In all the pain, anger and frustration, don’t forget to live. 
You know your child better than anyone... be their voice, trust your instincts, take time to breathe, (cry, scream, shout, whatever you need to do to get through) and know that you are not alone! 
Gina A.

Take Action to Fund Pediatric Brain Tumor Research

The National Brain Tumor Society
The Childhood Cancer STAR Act is the most comprehensive childhood cancer legislation taken up by Congress in decades, which was passed in 2018. This bipartisan bill is designed to advance pediatric cancer research and child-focused cancer treatments, while also improving childhood cancer surveillance, as well as providing enhanced resources for survivors and those impacted by kids’ cancers.

We now continue to work to hold Congress accountable to deliver on the bill’s promise for children with brain tumors by urging lawmakers to continue to carve out funding for the bill’s programs during the annual appropriations process for the federal government.

You can help this effort by taking action and contacting your members of Congress today!

The National Brain Tumor Society also continues to advocate that pediatric brain tumors research projects are eligible to receive funding from the Peer Review Cancer Research Program (PRCRP), a part of the Department of Defense’s Congressionally Directed Medical Research Programs. Since it was started, the PRCRP has funded important research in a variety of pediatric brain tumor types including ependymoma, and more. 
You can help ensure this source of funding for childhood brain tumor research remains available by taking this action alert on PRCP funding!
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