The CERN Foundation and the National Brain Tumor Society commemorated the 2022 Ependymoma Awareness Day during Brain Tumor Awareness Month
! Ependymoma Awareness Day was held on May 10 to represent the 10 different molecular groups of ependymoma and to bring attention to the diversity of the disease. Hundreds of butterflies were released to honor loved ones with ependymoma, recognize caregivers, and support ependymoma research. The delicate and beautiful butterfly represents the spirit of the ependymoma community as a symbol of hope through change. The butterfly release was photographed and videotaped so that supporters around the world can participate and share in this moving event. View the butterfly release photo gallery
The virtual program started with three ependymoma community members reading excerpts from books they have each written. These moving accounts are personal insights into what it is like to be diagnosed with or be the parent of a child with ependymoma. The next portion of the program featured footage from the Brain Tumor Awareness Month Butterfly Release Ceremony in Bethesda, MD. This event was held in connection to the Race for Hope-DC and Head to the Hill, NBTS’s flagship advocacy event. Brain and spinal cord community members involved included medical professionals, advocates, patients, and care partners.