Words of wisdom and events from Childhood Cancer Awareness Month
Words of wisdom and events from Childhood Cancer Awareness Month
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Childhood Cancer Awareness Month: It’s Complicated

Image. Tamiko's son gives a love sign on a beach while he waits to surf.
Ependymoma caregiver, Tamiko, shares insight into the different reactions from the pediatric cancer community during Childhood Cancer Awareness Month and offers words of wisdom to the brain tumor community. Tamiko shares “As varied as our reactions, instincts, and philosophies are, the diagnosis of cancer in a child deeply affects us all. Without mincing words, it is traumatic, and we all respond differently to trauma and will continue to do so over time. For bereaved parents, this month can be especially hard, yet this pushes some to speak out during September and others to hide.”

Mobile Primary Care Creating Change to Last a Lifetime

Shortly after her third birthday, Eva DeLotto was diagnosed with a grade II ependymoma. With Eva as their inspiration, Mobile Primary Care, the DeLotto family, and friends joined forces to host the first Mobile Primary Golf Tournament.
“Our hope is to continue to help raise awareness and support new research that is so critical in the treatment and outcomes of all those inflicted with this disease”, says Eva’s father, Rich DeLotto.
Last week, at the third annual Mobile Primary Golf Tournament, we celebrated Eva and her clear scans, and the impactful contributions made by Mobile Primary Care and the Golf Committee to create change to last a lifetime!

Together - Powered By St Jude

Together is a comprehensive online resource dedicated to pediatric cancer patients and their families. We provide trustworthy, up-to-date medical information and connect users with personally relevant topics in a clear, easy to use format. Together focuses on providing content that appeals to a variety of preferred learning styles and offers resources that families can use throughout the entire cancer journey.
The CERN Foundation, a program of the National Brain Tumor Society, is proud to be listed on the Ependymoma resource page.
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With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Under “Direct My Gift to Support,” remember to select the Ependymoma Research and Education Fund.
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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
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