Patient Experience Newslink
Patient Experience Newslink
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PATIENT EXPERIENCE NEWSLINK is The Beryl Institute's monthly publication featuring important policy analysis, publications, research, press and current affairs to enhance and inform your work.
POLICY  

CMS to Fund $30 Million in Grants for New Quality Measures
The CMS has unveiled $30 million in grant funding to develop new quality measures for the Merit-based Incentive Payment System. The agency wants to partner with clinicians, health systems, patient advocates and other stakeholders to develop measures that will lead to better health outcomes for patients. (Modern Healthcare, March 2018)
FDA, NORD Partner to Understand Patient Experiences with Care  
The FDA and the National Organization for Rare Diseases (NORD) will partner to create listening sessions during which FDA can learn about patient experiences with rare disease. The program will allow patients to share their perspectives on their own medical conditions, which in turn should allow FDA to integrate the patient voice into their research initiatives. (PatientEngagementHIT, March 2018)
At New Health Office, ‘Civil Rights’ Means Doctors’ Right To Say No To Patients
The Trump administration is embarking on a sweeping effort to redefine civil rights in health care, with critics accusing the Department of Health and Human Services of sidestepping the rights of patients to soothe a far smaller constituency: conservative nurses, hospitals and other caregivers. (Kaiser Health News, March 2018)
PRESS

Three Ways to Harness Consumer Feedback at Healthcare Organizations  
Many businesses measure their customer experience in terms of satisfaction or dissatisfaction, but the stakes are higher for healthcare providers operating in terms of life and death. Fortunately for healthcare organizations, time spent understanding the patient experience is rising in the midst of a larger customer experience revolution. (Managed Healthcare Executive, March 2018)
Google Rolls Out A New Tool to Help Health Providers Solve the Medical Record Mess
Google has already organized the world's search results. Now, it's moving on to medical information. The company's cloud business has set its sights on helping customers aggregate medical data, whether it's labs, medical records or X-ray imaging. (CNBC, March 2018)
Doctors Can Now Call Uber for Patients, Ditching Taxi Vouchers
Uber Health is a desktop platform for healthcare providers that allows doctors to provide rides for patients who might otherwise miss their appointments because they can't get to them. The benefits to doctors and hospitals of using ride hailing apps — which replace taxis and medical shuttles, but not ambulances — include on-demand scheduling, destination tracking and lower costs. (USA Today, March 2018)  
Sponsored 

The Future of Healthcare
HLTH is the leading event for innovation in healthcare, to be held May 6-9, 2018. It’s an unprecedented, large-scale forum for individuals, companies and policymakers who are reshaping the healthcare industry to learn, collaborate and evolve. Learn more about how HLTH is unique in bringing together all key stakeholders, ranging from established payers, providers, employers, and pharma services to disruptive startups and prolific investors, as well as representatives from government, media and analysts. 
PUBLICATIONS
 
Putting Humans at the Center of Health Care Innovation
An alternative emerging at healthcare institutions worldwide is human-centered design and co-creation, a set of approaches that can accelerate and humanize healthcare innovation. (Harvard Business Review, March 2018)  
Children and Young People’s versus Parents’ Responses in an English National Inpatient Survey  
Despite growing interest in children and young people’s (CYP) perspectives on healthcare, they continue to be excluded from many patient experience surveys. This study investigated the feasibility of, and additional information gained by, measuring CYP experiences of a recent hospital admission. (Archives of Disease in Childhood, March 2018)  
Hospitalization from the Patient Perspective: A Data Linkage Study of Adults in Australia  
This study investigated the experiences of a large cohort of recently hospitalized patients aged 45 years and over in New South Wales, Australia who were identified using data linkage. (International Journal for Quality and Healthcare, March 2018)  
FROM THE INSTITUTE

Increasing the Value of The Beryl Institute Membership
For years, The Beryl Institute has offered the community a growing library of resources to support you in leading a positive patient experience effort for your organization. As we continue the commitment to improving the human experience by offering value-added resources and services, the need for our members become ever so important. The question has become – how can The Beryl Institute best serve its members and the patient experience community? (March 2018)
Give Your Patients Permission to Dream
Chris Anselmo, writer and motivational speaker, shares his story about living with an adult-onset form of muscular dystrophy called Limb-Girdle Muscular Dystrophy Type 2B and what healthcare providers can learn from listening to patients. (March 2018)
Taking the Long View of Patient Experience
Allison Chrestensen, MPH, OTR/L, founder of Tandem Healthcare Solutions, shares her personal patient story and how taking the "long view" of patient experience work helps us to realize the true impact of "the little things". (February 2018)
FROM PATIENT EXPERIENCE JOURNAL VOL 4, ISS 3

Operationalizing person-centered care practices in long-term care: recommendations from a “Resident for a Day” experience
This study resulted in six amalgam exemplar Always Experience® action plans – for Admissions, Care Planning, Care, Dining, Activities, and Responsiveness – with desired objectives, specific operational practices, and relevant measures to evaluate outcomes.
Exploratory pilot testing of the psychometric properties of the person engagement index instrument among older, community-dwelling adults
This research evaluated the psychometric properties of the Person Engagement Index with community dwelling older adults and determine the factors that impact this population’s capacity to engage in healthcare.
I’m going to tell you a little about myself: Illness centrality, self-image and identity in cystic fibrosis
This study assessed the illness centrality of adolescents with cystic fibrosis (CF) and the specific ways that CF may affect adolescents’ identities, through the qualitative analysis of video narratives.
Patient experience of taking adjuvant endocrine therapy for breast cancer: a tough pill to swallow
This study examined women’s challenges related to adjuvant endocrine therapy adherence and management.
Join the discussion on patient experience topics in The Beryl Institute LinkedIn group.
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The Beryl Institute provides Patient Experience Newslink to share a broad range of current patient experience news and headlines. The Institute does not endorse the views expressed via these links or any products or services offered.
Special thanks to our Supporting Partners. These organizations have contributed to the future of the field by supporting the continued growth of The Beryl Institute as the global community of practice on improving the patient experience.
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