We have a new page on the website devoted to supporting those who care for someone with a urea cycle disorder. It can be a devastating, scary, lonely journey. Sometimes we all need a little support. We are here for you.
If you're on Facebook, we invite you to join our new support group. It's a support group for those who have, or care for someone with, a urea cycle disorder. Connect with other UCD families and caregivers, ask questions, learn, and share.
Our Cure the Cycle fundraiser is in full swing. In-person registration is closed, but you can still sign up to ride virtually! Set up your own fundraising page as a virtual rider and collect funds for the cause. Not ready to ride? You can donate to the cause by clicking below or texting 'Curethecycle' to (833) 755-6550!
A grant from the National Urea Cycle Disorders Foundation to the Pacific Northwest Research Institute in June is already hard at work in the lab of Aimée Dudley, Ph.D. The nearly $20,000 gift funded the purchase of a freezer and racks for storage of yeast strains related to ongoing research into the significance of urea cycle disorder (UCD) variants. The goal of the research is to improve the accuracy of UCD diagnosis.
