Patient Experience Newslink

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PATIENT EXPERIENCE NEWSLINK is The Beryl Institute's monthly publication featuring important policy analysis, publications, research, press and current affairs to enhance and inform your work. POLICY   Health Care’s New ‘Skinny Plans’: Winners and Losers New, more-limited health plans may draw consumers away from Affordable Care Act coverage and drive up prices on insurance sold in the health law’s marketplaces. (The Wall Street Journal, April 2018) FDA Chief Sees Big Things for AI in Healthcare   Scott Gottlieb, MD, is bullish on the opportunities artificial intelligence could bring to EHRs, decision support and more. (Healthcare IT News, April 2018) First Look at Health Insurance Coverage in 2018 Finds ACA Gains Beginning to Reverse The marked gains in health insurance coverage made since the passage of the Affordable Care Act (ACA) in 2010 are beginning to reverse, according to new findings from the latest Commonwealth Fund ACA Tracking Survey. (Commonwealth Fund, May 2018) PRESS Patient Experience is Bigger Than HCAHPS Scores   A difficult experience with the healthcare system inspired one nurse leader to improve patient experience through patient- and family-centered care. (Health Leaders, April 2018) Using Yelp for Your Health Online reviews provide valuable information about patient experiences, experts say, yet concerns remain. (U.S. News, April 2018) Family Caregivers Are Getting A Break — And Extra Coaching Across the country, community groups, hospitals, government agencies and nonprofits are doing more to support at least some of the estimated 42 million people who are the primary caregivers of adults and children who have disabilities, are recovering from surgeries and illnesses or are coping with Alzheimer’s and other chronic diseases. (Kaiser Health News, May 2018)   Patients Pave the Way for Interoperability  The new interoperability is upon us. Healthcare data, once confined to a single hospital or system, are increasingly moving more freely outside the constraints of an electronic health record system, giving patients added control over their care and arming providers with the information they need to close gaps in care. (Modern Healthcare, April 2018) PUBLICATIONS   Economics of Palliative Care for Hospitalized Adults With Serious Illness; A Meta-analysis Economics of care for adults with serious illness is a policy priority worldwide. Palliative care may lower costs for hospitalized adults, but the evidence has important limitations. (JAMA Internal Medicine, April 2018)   New PatientsLikeMe Studies Reveal How Patients Experience and Define “Good” Health Care   Two recent PatientsLikeMe studies have shed new light on the patient experience with health care and show that while opinions about care and provider performance vary according to condition, diverse patient groups agree on the top factors that constitute “good” care. (PatientsLikeMe, May 2018)   Improving Emergency Health Care Workers’ Knowledge, Competency, and Attitudes Toward Lesbian, Gay, Bisexual, and Transgender Patients Through Interdisciplinary Cultural Competency Training   The purpose of our study is to evaluate aggregate ED health care team member’s knowledge and attitudes toward lesbian, gay, bisexual, and transgender people pre- and post-cultural competency training education.(Journal of Emergency Nursing, April 2018)   FROM THE INSTITUTE Interconnected: An Exploration of Improvement Efforts Connecting Patient Experience and Communication Published in collaboration with the Academy of Communication in Healthcare, this paper explores the state of interpersonal communication practices in relationship to the patient experience outcomes in U.S. healthcare organizations from data collected through an online survey with 112 respondents and qualitative insights from selected phone interviews. (April 2018) More than a Hashtag: We are #PXTogether We celebrate the decision to join The Beryl Institute because membership shows individuals and organizations share a commitment to this work and see value in accessing content and resources to improve the experiences of their patients, families and teams. Each new thought, idea, process or question shared expands the library of resources and offers new insights and opportunity to others. That is the power of #PXTogether. (May 2018) Patient Experience: Putting the Patient Front and Center Katie Joyce, Senior Vice President, and Katie Ziemer, PhD, Associate Research Scientist at Ipsos Public Affairs, provide takeaways from a recent initiative they conducted in order to identify challenges and solutions for improving the complexities of patient experience. (April 2018) FROM PATIENT EXPERIENCE JOURNAL VOL 5, ISS 1 The consumer has spoken: Patient experience is now healthcare’s core differentiator The Beryl Institute’s recent study on Consumer Perspectives of Patient Experience in which participants reveal experience is extremely important to them, focuses on individual health, is grounded in an individual’s desire to be acknowledged and is identified as a key driver for healthcare decision-making. The Sherpa meets Maslow: Medicine and the hierarchy of needs In this article, a critical care physician returning to medicine after her own critical illness experiences a crisis of orientation. She replaces the former construct with a more humble model, in which the physician serves as an intermediary. Original parts: Aging and reckoning with cystic fibrosis related kidney disease This article presents perspectives on CF related kidney disease from a medical sociologist who is themselves managing these issues. The gift of pain with transformative possibilities This personal narrative explores the experiences of pain metaphorically as a gift, offers alternative ways to reflect on pain, life and taking risks to move from health literacy toward health agency with help.  > View all articles in PXJ Vol 5, Iss 1 Join the discussion on patient experience topics in The Beryl Institute LinkedIn group. Forward to a friend or share with colleagues by clicking the social media links at the top of this e-mail. Was this message forwarded to you? Sign up for Patient Experience Newslink. The Beryl Institute provides Patient Experience Newslink to share a broad range of current patient experience news and headlines. The Institute does not endorse the views expressed via these links or any products or services offered. Special thanks to our Supporting Partners. These organizations have contributed to the future of the field by supporting the continued growth of The Beryl Institute as the global community of practice on improving the patient experience. connect with us: The Beryl Institute | 1560 E Southlake Blvd, Ste 231 | Southlake, TX 76092 www.theberylinstitute.org

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