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Watch NETRF’s Research Symposium, NETWise on challenges for young patients.
Watch NETRF’s Research Symposium, NETWise on challenges for young patients.

NETRF’s 2020 Research Symposium: Bringing the NET Research World Together

Despite the change to a virtual meeting, NETRF’s annual Research Symposium held in November was a success. The Symposium reached more researchers than ever before and featured more than 70 presenters from 16 countries sharing their NET research. The Symposium is designed to drive NET research forward through collaboration and the sharing of data and new ideas. Read more about it in this summary from John Kanki, Ph.D., NETRF’s Director of Research. (MORE)

Holiday Greetings from the NETRF Team

As 2020 nears its end, we want to thank everyone who has helped NETRF during this challenging year, through your time, your gifts, and your messages of support for our team and mission. Here are our holiday wishes for you.

The Unique Challenges for Teens and Young Adults with NETs: New NETWise Podcast

A neuroendocrine cancer diagnosis when you are a teenager or young adult presents different medical, social, and even financial challenges than for older adults. NETRF’s latest NETWise podcast focuses on “AYA”—adolescents and young adults—and how to navigate the NET journey. (MORE) 

Plus, NETQuiz #14 on PNETs

While there are more options, treatment for PNETs needs to be individualized since these tumors can vary significantly in stage, grade, and their ability to cause hormonal symptoms.  Learn about all the treatment options in the NETWise podcast episode.
Then take the LACNETS quiz to test your knowledge of PNETs.

Should I go, or should I stay?

It is not unusual to find people with neuroendocrine tumors who have sought treatment outside the United States, especially prior to the approval of PRRT. Patients today still ask whether there are differences in what is available here and in Europe. Josh Mailman, NETRF Board member and NorCal CarciNET leader, shares his thoughts about this question and PRRT in this new blog post. (MORE)

What is “watchful learning”? How does it fit into NET treatment?

In neuroendocrine cancer, sometimes an appropriate treatment option is no treatment until symptoms or test results indicate tumor progression. Dr. Emily Bergsland discusses “watchful learning” and surveillance, when that approach may be recommended, and why. Watch this video from NETRF’s Know Your NETs Virtual Conference.

Having NET Surgery?
Consider Tissue Donation

If you are a NET patient who is having surgery, your excess tumor tissue is needed so scientists can grow cell lines for research. NETRF’s tissue donation program especially needs lungNET and PNET tissue. The more samples collected, the greater the chance for success and creation of diverse NET cell lines.
Scientists create models of tumors when cells multiply in the laboratory. These models are critical to cancer research and can be used to analyze the genetic composition of tumors and test the effects of drugs.
A small donation of tumor cells can have a big impact on NET research. A new NET cell line from an intestinal tissue sample donated through this program, has been created at the Broad Institute.
NETRF partners with to work with patients, collect the tissue, and send it to the lab. There is no cost to patients, physicians, or hospitals to donate tissue. (MORE)

#GivingTuesday Success

Thank you to everyone who participated in #GivingTuesday on December 2. As a result of your generosity, NETRF raised $50,000 from more than 150 donors. #GivingTuesday gifts will help NETRF support a pilot research project to study an innovative approach to better understanding NETs and developing improved treatments. (MORE)

December Brings us Closer to a Cure

NETRF’s 15th Anniversary campaign continues with many reflections and good wishes from longtime and new friends. Hear from some of them and their thoughts about Closer to a Cure, our year-end campaign.
It’s not too late to join our campaign and support NETRF to fund neuroendocrine cancer research in 2020. NETs have not taken a break during COVID, and neither have NET researchers. Please give to NETRF before December 31 and help us maintain momentum in the research that can develop better treatments for neuroendocrine cancer.


Making a Big Impact,
One Month at a Time

Erica Roberts’ father taught her to give back, a lesson she has taken to heart to honor her father, William Preston Roberts, Jr. who died from neuroendocrine cancer. “I donate to remember him and in hopes that a cure will be found so that another daughter doesn’t have to lose her dad in the same way I lost mine,” she says. Meet Erica, a member of NETRF’s Champions Giving Society and learn how her monthly generosity makes a big impact. (MORE)

This issue of NETRF's eUpdate has been sponsored in part by:

Doctor Database   Patient Groups
Newly Diagnosed   About NETs
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Contact Us

NET Research Foundation
31 St. James Avenue, Suite 365
Boston, MA 02116

(617) 946-1780 |
The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.
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