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August 2022 about us for patients for doctors resources events news

A Special Message from Grace Goldstein

One of my favorite older photos with zebra-striped attire!
Dear Friends,

I have some news to share with you – after 19 years at the Carcinoid Cancer Foundation I have decided to retire, effective August 31, 2022.

It has been an amazing experience working with the NET community and I am honored and grateful to have had the chance to know each and every one of you. When I joined CCF in 2003, I had the enormous privilege of working with a legendary NET specialist, Dr. Richard Warner, and his wife Monica Warner, who helped create the first NET support groups and was instrumental in bringing information about NET nutrition to the community. After Monica passed away in 2009, Keith Warner became CEO of the foundation and initiated a whole new way of working with the NET community – everything digital with an emphasis on reaching the greatest number of people worldwide. 

Keith encouraged me to write a blog – at that time I had no idea how to do that but he told me I’d figure it out and I did. Social media is one of my passions and it has helped to connect NET patients, loved ones, physicians, and the public globally. I have used social media as a way to bring important news to the community. One of the most professionally and personally rewarding experiences for me was when I was one of two members of the public to speak at the FDA ODAC (Oncologic Drugs Advisory Committee) hearings in 2011 for everolimus (Afinitor) and sunitinib (Sutent). As soon as the ODAC hearings concluded I was able to share the positive news from those meetings on Facebook with thousands of people.

There are so many wonderful memories I will always carry with me from my time at the foundation – everything from my work with Keith Warner who brings an outstanding perspective as a businessman to the nonprofit world to the International Neuroendocrine Cancer Alliance (INCA) to learning from brilliant physicians to my valued colleagues at pharmaceutical companies whose goal is to help NET patients and lots more.

I’d also like to give a shout-out to my fellow advocates in the NET community, near and far, and to all of the wonderful support group leaders who are there year-round for NET patients and their families. You give so generously of your time and make an enormous difference.

Especially important to me are the connections I have made with people diagnosed with NETs, loved ones, and those seeking a diagnosis. It is my hope that I have made a difference in your lives when you were looking for information, support by phone or email, resources to help live the best life possible with NETs, and hope for the future.

Please know you can turn to Keith Warner,, for whatever you need once I leave. He will be there for you.

Thank you for making such a difference in my life and for giving me the opportunity to be part of the NET community for nearly two decades.

With appreciation,

Grace Goldstein
Chief Operating Officer
Carcinoid Cancer Foundation
The Carcinoid Cancer Foundation's educational, awareness and advocacy activities are made possible by your contributions. These crucial activities lead toward early detection, improving the quality of life for cancer survivors, and ultimately to a cure. The Carcinoid Cancer Foundation is a 501(c)(3) nonprofit organization. All contributions to the Carcinoid Cancer Foundation are tax-deductible to the extent allowed by law.
Thank you for your support!
Carcinoid Cancer Foundation
118 North Bedford Road, Suite 100
Mt. Kisco, NY 10549
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118 N. Bedford Road Suite 100 | Mt. Kisco, NY 10549-2555 US
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