November 2017
news from your local nonprofit for all bleeding disorders
PROGRAM & EVENT CALENDAR

we EDUCATE

Denver Social Factor

ENROLLMENT & BENEFITS

Sat. November 18th
12:00pm - 3:00pm
13200 E 14th Pl, Aurora, CO 80011
Do you have questions about choosing the best insurance plan and benefits for you? Confused by how the open enrollment process works? Well if you have any questions about issues like these this is the program for you. The chapter and benefit specialists will be on hand for an educational program to help answer questions you may have during this confusing time.  
Topics and specialists will include:
  • Medicaid and Medicare enrollment.
  • Employer plan selection - what plan best fits you and your family?
  • Buying an insurance plan on Colorado's marketplace, Connect 4 Health.
  • Is your HTC, clotting factor, primary care physician in network? We'll help you discover!
  • One on one insurance counseling - bring your materials and get some guidance! Register today!
REGISTER NOW

we TRAILBLAZE

Backpacks + Bleeders 

Three Sisters Fall Hike

Sunday, November 19th
3:00PM - 5:30PM
Three Sisters West Trailhead - 
MAP 
This hike is for all skill levels and all ages.
Severe hemophiliac Chris Bombardier will be joining us as we go over proper technique for storing and carrying factor, emergency preparedness on the trail, and you will even have the opportunity to practice a mock infusion on the hike!
Please visit the Backpacks + Bleeders Facebook page for more information. 
REGISTER NOW

We EDUCATE

VWD COFFEE CHAT Series

Saturday, December 9th
10:00am - 11:30am
NHF Colorado Office Building
Denver, CO 80222
Come join the Chapter and HTC Physicians for our new VWD Coffee Chat series. This series is for community members with a Von Willebrand's diagnosis.  We will go over different topics of interest including diagnosis difficulties, future research, treatment options and much more!
There will also be coffee and breakfast snacks at the event.
REGISTER NOW

We CONNECT

Western Slope Holiday Party!

Saturday, December 2nd
12:00pm-3:00pm
2469 Riverside Pkwy, Grand Junction, CO 81505
REGISTER NOW

We CONNECT

Denver/Colorado Springs Holiday Party!

Sunday, December 10th          
12:00pm-2:00pm
6901 S Peoria St, Englewood,                           CO 80112
REGISTER NOW

we CONNECT 

INTRODUCING A NEW NEWSLETTER SECTION!

Chapter staff and advocacy committee members will cultivate this list monthly to pick out the key articles to keep YOU in the know! This list will have articles pertaining to bleeding disorders, current research, healthcare policy/reform and much more! 
  1. A must read story, with a hemophilia patient at the center, that is a painful glimpse of what our current healthcare system is capable of.

  2. Octapharma grants our own Chris Bombardier support to climb Mt. Vinson in Antarctica 

  3. What Coloradans need to know about open enrollment 2018

  4. FDA Grant Investigational New Drug Status to BioMarin's Hemophilia A Gene Therapy

we CONNECT

BOARD MEMBERS NEEDED

The Chapter is looking to expand our group of dedicated, tenacious, visionary volunteers and we want YOU!
Board leadership is vital to our organization - be part of something meaningful in the lives of bleeding disorder patients and their families. Time commitment is relatively 3-4 hours a month.
Contact Amy for more information:
we SUPPORT

PUERTO RICO RELIEF

As you know, and have seen in the news, the damage caused by the hurricane in Puerto Rico has been catastrophic. NHF has been in communication with leadership from the local Hemophilia Treatment Center and Region II regarding their direct needs.  While the immediate need today is access to care and medicine, and Region II, HRSA, ATHN, Hemophilia Alliance, NHF and others are working on those needs, we know that in the near future financial assistance will be crucial.  
 
NHF is working with the hemophilia treatment center in Puerto Rico to coordinate aid to people with bleeding disorders. NHF is collecting funds which will be donated directly to help the bleeding disorders community and HTC in Puerto Rico.
DONATE HERE
NHF is acutely aware of the suffering of the all the US citizens of Puerto Rico. If you would like to help in the recovery efforts, there are many organizations who are working to rebuild.
we CONNECT
LITTLE ONE ADVENTURER
 
Introducing practical padded clothing designed and made by Stephanie Weilert, a local mama of a 2 year old severe hemophiliac. Contact us for 50% OFF or free padded clothing if you are unable to afford. All proceeds benefit the Colorado Chapter National Hemophilia Foundation
SHOP NOW

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