Virtual Community Gathering on May 10, Butterfly Release & more
Virtual Community Gathering on May 10, Butterfly Release & more
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Ependymoma Awareness Day Virtual Community Gathering:
Opportunity to support, share, and connect in a welcoming space
A group people stand in a circle out in the sunlight, in support of one another.
Join the Ependymoma Awareness Day – Virtual Community Gathering: Opportunity to support, share, and connect in a welcoming space. As a part of Ependymoma Awareness Day, the National Brain Tumor Society and the CERN Foundation invite you to gather virtually with other ependymoma survivors and care partners at 12 p.m. on May 10. This special opportunity is designed to inspire and empower, serving as a reminder that having a rare disease does not mean you are alone. Registration is required. Ependymoma Awareness Day – Virtual Community Gathering will be hosted on Zoom, and specific login details will be provided shortly before the session start time.
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Head to the Hill Welcome Reception & CERN Butterfly Release Ceremony

The CERN Butterfly Release will be held during the Head to the Hill Welcome Reception on May 8 at 4:30 p.m. in Bethesda, Maryland. Registration is required for local participants who are not already registered for Head to the Hill.
Join Us »
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Get to know Ependymoma Survivor and 2023 EAD Speaker Tiffany who was only 17 years old when she was diagnosed with a tumor in her brain »
 
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Support the Ependymoma Fund for Research and Education
With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.
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  Make a gift
The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.
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