pALS Newsletter - Winter 2024 |
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🌟 Hello 2024! As we enter into the new year, we look forward to the shared moments ahead with this amazing community.
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Read below to meet our new team members and explore some exciting opportunities to make an impact – together, let's make this year truly special!
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Meet Our Newest Additions!
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Introducing our Director of Development, Katherine O'Hagan. Katherine brings over 20 years of fundraising expertise. Her impressive journey includes a successful career on Wall Street before transitioning into the non-profit sector fueled by her passion for accessibility in education and healthcare.
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As a native New Yorker turned proud New Orleanian since 2019, Katherine is no stranger to the vibrant culture of the Big Easy.Â
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Abby Muirhead's role as the CRM and Development Associate is fueled by a unique combination of professional expertise and personal dedication. The Customer Relationship Management position formulates and implements strategies to grow philanthropic support of Team Gleason.
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Coming from a non-profit background and having served as a caregiver for a family member with ALS, Abby aspires to merge her skills and insights for a meaningful impact.
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| As an IT Specialist, Corey Bernich brings a wealth of technical expertise and leadership to Team Gleason. Through management of technical partnerships critical to organizational IT, Corey will seek to partner with Team Gleason leadership as we continually build upon and improve our support experience for pALS.Â
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Originally from Louisiana, Corey lived many years in the panhandle of Florida and attended college in Jacksonville, FL. He is a New Orleans Saints die-hard and Miami FC fan.
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"I recently received my custom Permobil power wheelchair. It has changed my life. I can now actually sit and recline and get into my van and be more mobile. It really is life changing, I don't know what we would have done if it were not for the help that Team Gleason Foundation has given us. Thank you so much." - Theodore B., Apple Valley, CA
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Get Involved with the Community
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Share Your Voice with the
Speech Accessibility Project |
Now recruiting individuals with ALS to help speech recognition tools understand diverse voices.
The University of Illinois Urbana-Champaign will safeguard your personal information as a part of this project funded by Amazon, Apple, Google, Meta, and Microsoft.
Record your speech from the comfort of your home. Mentors from Team Gleason are ready to help you through the participation process.
Participants will be compensated - Participants can earn up to $180. Caregivers can earn up to $90.
For eligibility criteria and registration, click here.
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Who doesn’t love a love story? |
Cheers to our friends Roger and Val on recently celebrating 37 years of marriage! 🎉 Their love story warms our hearts, and we can't wait to be inspired by yours, too!
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As Cupid prepares his arrows for Valentine's Day on February 14th, Team Gleason is eager to dive into the tales of your love. Whether it's the charming story of how you met your significant other or the heartfelt reasons your caregiver holds a special place in your heart, we want to hear it all!
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Take a moment to share your beautiful story or shoutout someone you love through our quick survey and we'll feature them on our Instagram on Valentine's Day!
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Join Team Gleason's
CCC Charity team! |
Each year, runners/ walkers/ joggers/ rollers like you have signed up to help raise needed funds for Team Gleason.
We hope you’ll support our team and help us be the largest Charity Team!
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Share this with your friends and family - virtual runners welcome!Â
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rivALS NFL Game Day 50/50 Raffle
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Two rival NFL franchises, New Orleans Saints and Atlanta Falcons, partnered to host the rivALS 50/50 raffle during both of their head-to-head matchups this season. Over $100k in proceeds were raised for both Team Gleason and Tackle ALS in their mission to support the ALS community. Learn More
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Download the Team Gleason
Power Wheelchair Guide
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Have you seen our Wheelchair Guide powered by Numotion?
The Team Gleason Power Wheelchair Guide is focused on providing individuals living with ALS the information needed to feel empowered to advocate for themselves during the wheelchair evaluation and beyond.
This guide will help an individual find the wheelchair that fits their unique needs and desires.
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Join our next Team Gleason Virtual Zoom Gathering for both those living with ALS and their caregivers. We are inviting everyone - no matter where you live! First Thursday of Every Month at 12pm CST.
Need Additional Support? *Please note, meetings below are now held on the second week of each month.
Second Wednesday of Each Month* | 8pm CST: A gathering focused on adult children of persons living with ALSÂ
Second Thursday of Each Month* | 1pm CST: A gathering focused on caregivers of those living with ALS
Members living in Louisiana and Mississippi can also email Kelly (below) for information on an additional meeting group.
We hope you can join us! If you would like to be invited to participate, please email kelly@teamgleason.org.
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CHOOSE TO REUSE! To return or donate equipment please contact returns@teamgleason.org so we can best assist with the logistics of the return or donation.
If we are able to accept the donation then Team Gleason will email prepaid shipping labels for the boxes.Â
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Simply forward this email to them and have them click the button below to subscribe!
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