Get updates + share your experiences with generic medications on our new web page dedicated to keeping our community informed |
A new, generic version of RAVICTI® is now available and more versions will likely be entering the market over the coming year. NUCDF has launched a new web page dedicated to keeping the UCD community informed about the latest news on this important transition. The page also includes a feedback form so you can report any issues you experience with this transition. We will also share news updates on our social media channels. The page provides an important overview of generic medications. Learn updates on generic versions of RAVICTI®, understand patient‑transition impacts and savings, and share how these transitions affect you or your family. Access the latest guidance and advocacy efforts to ensure affordable access and empower your care team with timely information.
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| Giving Tuesday is coming December 2
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Your support makes an incredible difference for children and adults living with UCDs. As we close this year, your donation helps NUCDF continue saving lives, empowering families, and driving progress toward better treatments and a cure. Your generosity drives every inch of progress. When you give to NUCDF, you help us deliver the right information at the right time to save lives.
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| Check Ammonia Month: Honoring Families, Sharing Stories, Saving Lives |
During October, Check Ammonia Month brought the UCD community together to raise awareness about the importance of ammonia monitoring. Families shared powerful stories and insights, reminding us that early detection and vigilance can save lives. Together, we honored those we’ve lost and renewed our commitment to supporting every family navigating this journey. Thank you for helping us keep awareness strong all year long.
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| Every Voice Counts: Help Cambrooke Understand UCD Needs |
Cambrooke is gathering feedback from people affected by UCDs, including caregivers, to gain a better understanding of what’s working—and what’s missing—in current medical formulas.
If you are a parent or caregiver with a UCD, please take the survey.
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Show Your Support — Share How NUCDF Has Made a Difference! |
Have we made a difference in your life or your family’s UCD journey? Share your story! Your review helps others discover the National Urea Cycle Disorders Foundation and shows the impact of our community. It only takes a few minutes — and your words can help us earn the 2025 Top-Rated Great Nonprofits Award!
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News, stories, and resources—right here on the NUCDF Blog. |
Stay connected and informed! The NUCDF Blog brings you timely updates, helpful resources, and community highlights between newsletters.
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