Conference registration is open, Rare Disease Day recap, and more!
The National Urea Cycle Disorders Foundation (NUCDF) is proud to announce the 2026 NUCDF Family Conference, taking place in Memphis, Tennessee, in collaboration with Dr. Andrea Gropman of the Pediatric Translational Neuroscience Initiative at St. Jude Children’s Research Hospital
Guided by the theme Bridge to the Future, the 2026 Family Conference will bring together individuals and families affected by urea cycle disorders, clinicians, researchers, and industry partners for a powerful exchange of knowledge, connection, and hope. This year’s conference will focus on building bridges between families and experts, research and clinical care, childhood and adulthood, and today’s challenges and tomorrow’s possibilities.
|
Rare Disease Week 2026 kicked off on Monday, Feb. 23, with a special NUCDF ECHO® session, an announcement from the U.S. Food and Drug Administration about a new approval pathway for rare disease treatments, and the approval of pegzilarginase, a treatment for Arginase 1 Deficiency.
|
Get ready for UCD Awareness Month this April!
|
|
|
Manage your preferences | Opt Out using TrueRemove™
Got this as a forward? Sign up to receive our future emails.
View this email online.
|
75 S. Grand Ave | Pasadena, CA 91105 US
|
|
|
This email was sent to .
To continue receiving our emails, add us to your address book.
|
|
|
|
