Farewell to 2021 and Happy 2022!
Farewell to 2021 and Happy 2022!

It's (nearly!) a wrap!


Despite the best laid plans, the end of the year has a way of sneaking up on all of us. As we at NETRF begin to close out our year, we want to thank all of our donors, partners and friends for your continued support and generosity.
And if you haven't yet, there's still time to make that last donation, and we make giving to NETRF super easy! You can donate online here, you can call Eva May in the Development Office at (617) 946-1780 to make a donation, or the good old fashioned way works too by sending your check payable to NETRF to 31 St. James Avenue, #365, Boston, MA 02116.
Your generosity shone bright on Giving Tuesday 2021; NETRF received more than 75 gifts totaling over $25,000! Every dollar we receive funds critical research to develop better and more effective treatments for people living with NETs. 
Today and every day, we are humbled and honored to receive your support.  

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Running for NETs


There's an old saying that "90% of life is showing up." Well, no one "shows up" more for her life and NETs than physician and NET patient Elizabeth Zide. 
Diagnosed in 2018, her prognosis is good. After two surgeries, 95% of her cancer has been removed. Biopsies show her cancer is slow growing, so she’ll likely enjoy a healthy life for decades to come. 
An avid athlete her whole life, Zide now combines her love of physical activity with her dedication to raising money for NETRF. 
"I want to raise awareness so we can get more research dollars to find better diagnostic techniques,” she said. “It’s not like other cancers, so no one type of chemotherapy works.”

She feels especially drawn to physical challenges that bring awareness to her cause.
“I’m a big proponent of living healthy and exercising. As a doctor, I know bodies respond to treatments better when they’re healthy,” she said. “And it’s important to me to be active and check off some of these bucket list things, to prove to myself that I can, that I’m recovered.”
In October, Zide ran the Detroit Free Press Half Marathon with the goal of raising $15,000. As of today, she has raised more than $26,000. 
"Race day was nice, decent weather, maybe a tad chilly," said Elizabeth. "I surprised myself with a faster time than anticipated. Definitely not a personal record, but that was never the goal!! As in recovery, life, etc there is no quitting!! I tried to keep a fun attitude and made sure to thank the police and volunteers along the route."

NETRF is tremendously grateful to Elizabeth and all her supporters for their outstanding fundraising.

Genome Characterization of PNET

In this presentation, Trevor Pugh, PhD, FACMG, discusses his 2020 NETRF-funded research project, “Establishment and Genome Characterization of PNET Mouse Models.” Dr. Pugh is a senior scientist at the Princess Margaret Cancer Centre, which is part of the University Health Network in Toronto, and director of genomics at the Ontario Institute for Cancer Research. In this video, Dr. Pugh is joined by his collaborator, Daniel Schramek, PhD, an investigator and assistant professor at Lunenfeld-Tanenbaum Research Institute. View the video here. 

KNOW YOUR NETs Videos Available Online


The complete playlist of our 2021 KNOW YOUR NETs Virtual Patient Conference is available online here. Each talk is listed separately so you can watch just what you're interested in. We hope this tool is helpful for everyone navigating their NETs journey.
As we begin planning for our 2022 conference, we are always interested in learning what YOU want to know. If there is a topic you're interested in knowing more about, please drop us a note here.

Celebrating Caregivers

As we gather with family and friends during the holidays, it is a great opportunity to celebrate the caregivers in our lives. For people with neuroendocrine cancer, their caregiver is a partner and advocate on the NET journey. Learn more in this episode of NETWise, The Importance of Caregivers. Listen here. 
After you listen to the episode, check out the NETWise quiz by clicking the image below.

Happy Holidays! 

All of us at NETRF wish all of you a very joyous holiday season. Click the image below to view a message from the team.

Special thanks to Advanced Accelerator Applications for sponsoring this December E-update. 

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NET Research Foundation
31 St. James Avenue, Suite 365
Boston, MA 02116

(617) 946-1780 | info@netrf.org
The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.
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