In recognition of May as Mental Health Month, the Neuroendocrine Tumor Research Foundation (NETRF) is exploring topics to help people create healthy routines to boost mental health and general wellness.
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Living with NETs during COVID-19Your mental health and well-beingOncology social worker Kalen Fletcher, MSW, LICSW, MPH, Beth Israel Deaconess Medical Center, Boston, joins Elyse Gellerman, NETRF Chief Executive Officer, to discuss managing your mental health during COVID-19. Together, they explore tools to manage stress from delayed or canceled appointments, isolation, and worrying about exposure to COVID-19. Learn effective coping strategies for loneliness, anxiety, and sadness. (MORE)
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Facing the loss of a loved one
COVID-19 disrupts traditional and cultural bereavement rituals. Learn more about the unique challenges faced by those grieving the loss of a loved one and learn ways to cope. (MORE)
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Miss Flora to the rescue
In self-isolation for COVID-19, a children’s librarian with progressive disease finds time, energy, and creativity to develop a virtual playground to help families cope with the stress of uncertain times. (MORE)
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Patient and caregiver survey on COVID-19
We want to know how we can continue to offer you meaningful, convenient educational resources on neuroendocrine cancer during COVID-19.
Please help us by sharing your thoughts and opinions in a brief, anonymous survey. Your answers will help shape the topics we address in the coming months and how that information is delivered. Thank you. (MORE)
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Mobile SSA injections
If you receive somatostatin analog (SSA) treatments to control tumor growth or help manage NET symptoms, learn about temporary changes to the mobile administration programs offered by leading drug manufacturers to help more patients access at-home injections. (MORE)
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NET experts produce info resources on COVID-19
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Who wants to be a NET expert?
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Are NET researchers in the lab?
NETRF has 30 ongoing research studies in eight countries. How has COVID-19 affected their work? While safety precautions vary depending on location, most researchers are finding ways to use time out of the laboratory to conduct data analyses, write up research, and generate new ideas for projects. Read NETRF's Research Director's update on our funded projects. (MORE)
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Organoids progress recognized
NETRF's funded research on organoids was awarded the Presidential Abstract for Basic Science by the European Neuroendocrine Tumor Society (NANETS) at its 2020 annual meeting. Talya Dayton, PhD, Hubrecht Institute, Netherlands presented an update on the project's use of miniature replicas of human organs to understand how NETs grow and form. (MORE)
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Noteworthy achievements
Two researchers previously granted NETRF research awards were honored in April.
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David Tuveson, PhD, was named President-Elect for 2020–2021 by the members of the American Association for Cancer Research (AACR). He will assume the presidency in April 2021. Dr. Tuveson is the Director of the Cold Spring Harbor Lab Cancer Center. He was awarded a research grant by NETRF in 2010 for his work focused on developing murine models of NETs. (MORE)
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Carl H. June, MD, was elected to the U.S. National Academy of Sciences. Dr. June is Director, Center for Cellular Immunotherapy, Abramson Cancer Center, University of Pennsylvania. Dr. June is a pioneer in the development of immunotherapeutic strategies and served as an investigator in multiple NETRF-funded studies to develop CAR T-cell therapies for the treatment of NETs. (MORE)
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Thank you!
We want to thank everyone who participated in #GivingTuesdayNow. NETRF received 61 gifts to honor and recognize 53 NET specialists. With your generosity, we raised over $16,000 to support NET research and education. We will send out Certificates of Applause to the providers honored during this one day of giving. Check out our website to read all the moving tributes people posted about their NET specialists. (MORE)
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Virtual concert honors Dr. Aaron Vinik
Tiffanny and Josh Thomason (left) hosted “Music to Ignite NET Research,” a virtual concert on April 29, 2020, to raise money for NETRF. Tiffanny, who lives with NET, says she believes strongly in the widespread benefits of research, "When NETRF is able to fund research it not only can change the lives of NET patients, but it has the potential to positively impact EVERYONE."
Close to 60 people attended the live event that raised more than $7,000 in honor of Aaron Vinik, MD, PhD, a prominent endocrinologist who cared for NET patients for nearly four decades before retiring from Eastern Virginia Medical Center in Norfolk, VA. Dr. Vinik and his wife made a guest appearance on the program to thank all who celebrated his contributions to the field. The concert featured performances by Jocelyn Oldham, Karl von Klein, Ryan Sauls, and Will Sauls.
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