pALS Newsletter - Summer 2025 |
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We know ALS is 24/7 for our community, and that’s why we never stop working to fulfill the over 800 monthly requests for support that we receive.
Our focus will always be to empower those living with ALS and their families. In one of Team Gleason’s first meetings, Steve declared, “There Will Be No White Flags.” He meant it and so do we.
We promise to keep pushing the boundaries of what is possible in living with ALS.
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Get Involved with the Community
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Take Me Out to the Ballgame!
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Team Gleason is proud to be observing the fourth annual Lou Gehrig Day! Lou Gehrig Day marks the day in 1925 when Gehrig took over as the Yankees' regular first baseman and began his record-breaking streak of 2,130 consecutive games.
Help us represent the ALS community at Lou Gehrig Day at Wrigley Field on June 15th during the Cubs vs. Pirates during the 7th Inning Stretch!
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7th Inning Stretch: We are hoping to capture ALS fighters and their families singing “Take Me Out to the Ballgame.” Please send your videos (filmed in landscape orientation) by 6/5.
Make sure to film in landscape orientation - filming on your phone is perfectly fine! Please also make sure the singers perform the entire song in the video:
Take me out to the ball game,
Take me out with the crowd;
Buy me some peanuts and Cracker Jack,
I don’t care if I never get back.
Let me root, root, root for the home team,
If they don’t win, it’s a shame.
For it’s one, two, three strikes, you’re out,
At the old ball game.
You can submit your video by emailing it to Kacie.Banegas@teamgleason.org by June 5th. The video has been a wonderful part of the day every year and we hope you will send us some footage so we can highlight ALS fighters!
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Share Your Voice with the
Speech Accessibility Project |
Now recruiting individuals with ALS and PLS to help speech recognition tools understand diverse voices.
Artificial intelligence and machine learning allow people to use speech recognition, such as voice assistants or translation tools, to operate technology using their voices. Researchers have trained an automatic speech recognition tool using the project's recordings.
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You can be a part of this critical research
by sharing your voice with the Speech Accessibility Project!
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The University of Illinois Urbana-Champaign will safeguard your personal information as a part of this project funded by Amazon, Apple, Google, Meta, and Microsoft.
Record your speech from the comfort of your home. Mentors from Team Gleason are ready to help you through the participation process.
Participants living with ALS or PLS can earn up to $180.
Caregivers can earn up to $90 as well.
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Join the National
ALS Registry |
The National ALS Registry is a crucial initiative designed to empower individuals living with Amyotrophic Lateral Sclerosis (ALS) to actively participate in groundbreaking ALS research.
Together, we can turn today’s research into tomorrow’s breakthroughs.
Join the National ALS Registry and be a driving force in the quest for a world without ALS.
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Team Gleason Community Events
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10 Years of Crescent City Classic |
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To each and every one of our 93 Team Gleason Charity Team Members who laced up, showed up, and raced for our 10th Crescent City Classic on Saturday, April 19th – we are absolutely blown away by your energy, heart, and determination!
Your collective efforts have raised $50,000 to support the ALS community.
This was more than a race — it was a statement of strength and teamwork and full of unforgettable moments. Thank you!
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Danny’s Lake Tahoe Adventure |
Danny was diagnosed with bulbar onset ALS in July 2024 and knew he wanted to check off a bucket list item: visiting Lake Tahoe. With the help of Team Gleason that dream started to come together.
Although things didn’t go quite as planned - Danny got sick soon after arriving and spent time in the hospital - he did enjoy the quiet moments he got to share with his loved ones in such a beautiful place.
Even when plans don’t unfold as expected, Danny’s Adventure proved that simply being together means everything.
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| Tyann has loved football since she was a kid, but she never imagined she’d one day attend the Super Bowl.This February, that dream came true thanks to the Team Gleason.
Tyann’s life changed in 2022 when she was diagnosed with ALS. Because of medical expenses, travel seemed impossible until she was connected with Team Gleason and chosen for the Super Bowl LIX experience. The highlight of her trip was meeting Steve!
For one day, ALS took a backseat and Tyann was free to simply enjoy the game, the energy, and the joy of being a fan.
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Download the Team Gleason
Power Wheelchair Guide
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Have you seen our Wheelchair Guide powered by Numotion?
The Team Gleason Power Wheelchair Guide is focused on providing individuals living with ALS the information needed to feel empowered to advocate for themselves during the wheelchair evaluation and beyond.
This guide will help an individual find the wheelchair that fits their unique needs and desires.
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Join our next Team Gleason Virtual Zoom Gathering for both those living with ALS and their caregivers.
Healing Hearts - the first Monday of every month from 1 to 2 pm, CST.
Coast to Coast - the first Thursday of every month from 12 to 1 pm, CST. This gathering is primarily for pALS (persons living with ALS) but often their spouse will join and certainly is welcome to join.
Young Adults - the first Monday of every month from 7 to 8 pm, CST. This gathering is for adult children whose parent is living with ALS.
Caregivers - the second Thursday of every month from 1 to 2 pm, CST. This gathering is especially for our caregivers, as the name would indicate.
Louisiana ALS - Every Friday from 11 am to 12 pm, CST.
Members living in Louisiana and Mississippi can also email Kelly Viator for information on a weekly meeting group and a bi-monthly meeting group.
We hope you can join us! If you would like to be invited to participate in any of these gatherings, please email kelly@teamgleason.org.
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Returning Equipment Empowers the Community! |
Did you know? Portable power wheelchairs, Zoom recorders, and more are managed through Team Gleason's loaner closet! Once you are no longer in need of your Team Gleason equipment, we encourage you to ship it back to Team Gleason so we can repurpose it for another family.
Returning is easy! If we are able to accept the return or donation, Team Gleason will email you prepaid shipping labels for the boxes. This allows us to continue to provide independence and empower the community!
Save your box! Now accepting portable power wheelchair returns. Keeping the box that it is shipped in ensures a quick and cost-effective method of return when needed.
To return or donate equipment please contact returns@teamgleason.org so we can best assist with the logistics of the return or donation.
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