NEW: NET Knowledge Center
NEW: NET Knowledge Center

A Moment of Gratitude 


This month, NETRF recognizes all our donors who make it possible for us to advance NET research and support patients and families. We are proud to share our 2022 Annual Report, which highlights the impressive research that is driving new discoveries.

2022 was a year of renewed dedication to our mission, marked by our funding of 14 research projects and the return of our in-person Margie & Robert E. Petersen Neuroendocrine Tumor Research Symposium. We also deepened our commitment to providing expert patient education to our NET community, with record attendance at our KNOW YOUR NETs virtual conference, and the release of our first Spanish episode of our NETWise podcast.

NETRF’s research investment now totals more than $36 million. NETRF is often the only funder of laboratory research that leads to new treatments and future clinical trials. We support researchers early in their careers so they can dedicate themselves to NET research.  

Thank you for opening the doors to new NET discoveries.  We cannot do our work without your support. Read on for a special opportunity to multiply your impact. 
With gratitude,
Elyse Gellerman, CEO

With The Li Family Match 

Thank you for your support. You have a multiplier effect on the NET research landscape. 

As you know, more often than not, NETRF is the only funding source available for many scientists working to understand this complicated and uncommon cancer. Whether through the renewal of your annual gift, the sponsorship of a research award, or hosting a fundraiser, you have a life-changing impact.

This year, the Li Family has graciously pledged to match - dollar for dollar - every donation we receive until June 30, 2023, up to $10,000. With this generous match, your gift will have double the impact, multiplying our pathways to discoveries and helping patients thrive.
Please help us by making a gift today at netrf.org/give.
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New! NETRF Launches 

NET Knowledge Center


NETRF is thrilled to share our new NET Knowledge Center - designed for YOU!
We know that current patient education and information is vital to help you live well with NETs, and we also know that finding credible information and education can be challenging and difficult to navigate.
In an effort to present our community with a clearer, more concise and easily navigable platform, NETRF developed the NET Knowledge Center. The NET Knowledge Center is a comprehensive resource organized to direct you to the information you need to be engaged in your NET journey while connecting you to a community of resources and ways to be involved.
Visit our new NET Knowledge Center and let us know what you think!

Register for July's

KNOW YOUR NETs Patient Education Conference


Our 2023 KNOW YOUR NETs Patient Education Conference is a little over a month away! Registration is still open here, and you can read the full agenda here. 
We are thrilled to bring you another information packed presentation in partnership with University of Chicago Medicine's Comprehensive Cancer Center. Presentations include What's New in NETs, Living & Thriving with NETs and Multidisciplinary Care for NETs. Register today! 
REGISTER

NETRF Is Coming to TX!


Save the Date: September 23, 2023 in Austin,Texas for NET Impact: Thrivership and Research Patient Education Program.

This in-person patient and caregiver education program will offer the opportunity for NET patients and caregivers to get information and education from NET specialists and NET researchers, learn NET thrivership tools and engage and connect with the larger NET community. Details to come, so watch your email!

Be Heard!


In this month's NETRF’s Thrivership series we focus on why your voice matters. Our Director of Patient Education, Jessica Thomas, LCSW, shares ways to talk about quality of life with your healthcare team, learn more about our 2023 KNOW YOUR NETs agenda and check out NETRF's brand new NET Knowledge Center.

Understanding The Importance of Funded Research 


How do scientists conduct research, from beginning to end? And what are some of the challenges that NET researchers face as they work through that process? Learn why basic research in the laboratory is crucial to discovering new treatments. Clinical trials are just the last stage of this process, and they cannot happen without years of careful pre-clinical work, which is often underappreciated and underfunded.

Listen to our NETWise Podcasts about NET Research to learn more:
Episode 19: The first of two episodes that discuss a topic near and dear to us at NETRF: NET research. NETs are extremely complicated cancers and there is still a lot the medical community needs to learn about them.
Episode 20: Part two of our deeper dive into understanding NET research, this episode takes a closer look at how scientists conduct the research that we hope will yield the next generation of effective treatments for NETs. This episode looks specifically at the vital role NETRF plays in this process and how and why we choose the researchers we support.

Highlighting
Global Gaps in Access to Diagnostics & Treatment for Neuroendocrine Cancer 


A review article just published online in The Journal of Neuroendocrinology documents global gaps in access and treatment for NETs. INCA (International Neuroendocrine Cancer Alliance) authored the article, based on the findings of the Survey of Challenges in Access to Diagnostics and Treatment for NET Patients (SCAN).

The survey revealed inequities in availability and affordability of diagnostic facilities/techniques, and treatment modalities, as well as diagnosis waiting time and misdiagnosis, and quality of care.
Gaps were seen in both emerging and advanced economies across the world.
NETRF CEO Elyse Gellerman is among the team of authors, which represents INCA member organizations and NET physician experts. Read Global Challenges in Access to Diagnostics and Treatment for Neuroendocrine Tumor (NET) Patients here.

Special Thanks to Ipsen for Sponsoring this E-Update
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Contact Us

NET Research Foundation
31 St. James Avenue, Suite 365
Boston, MA 02116
(617) 946-1780 | info@netrf.org		 The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.
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