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August 2021

Unique Opportunity for Neuroendocrine Tumor Patients

For many neuroendocrine cancer patients, access to physicians who specialize in this disease is challenging or simply not possible. The National Cancer Institute, NCI, is offering neuroendocrine tumor (NET) patients a unique opportunity to have a multidisciplinary tumor board review of their medical records and make recommendations about NET treatment options – at no charge. For those who see a NET specialist, this is an opportunity to get a second opinion.

“We know that many NET patients cannot travel to see specialists and we want them to have the best guidance and care possible,” says Jaydira Del Rivero, MD, Director of the Center for Cancer Research Neuroendocrine Tumor Program at the National Cancer Institute in Bethesda, Maryland. “By offering to review the medical records and scans of NET patients, we are giving them the benefit of the experience and expertise of physicians who best know this uncommon cancer.”

In order to have a NET tumor board review from the NCI, patients will need to submit all medical records and scans before a review can be scheduled. Please note the NCI can only do a review for people who have a confirmed NET diagnosis by biopsy, surgery or a Dotatate scan.

As a limited number of cases can be discussed during the weekly NCI NET tumor board review meetings, reviews will be scheduled on a first-come, first-served basis once all documents are received.

To find out how to submit medical records, please contact Dr. Del Rivero at jaydira.delrivero@nih.gov .

The Carcinoid Cancer Foundation does not endorse or promote any of the medical opinions or guidance provided as a result of NCI NET tumor board reviews. NET patients should not rely solely on the opinions or information provided by the NCI and should seek the guidance and direction of their own physicians and healthcare providers regarding any choices about their health or treatments.

The Carcinoid Cancer Foundation's educational, awareness and advocacy activities are made possible by your contributions. These crucial activities lead towards early detection, improving the quality of life for cancer survivors, and ultimately to a cure. The Carcinoid Cancer Foundation is a 501(c)(3) nonprofit organization. All contributions to The Carcinoid Cancer Foundation are tax-deductible to the extent allowed by law.

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