Family Voices of California
March 20, 2019

Legislative

Action Alert! AB 947 supports access to the Expanded Core Curriculum (ECC) and Orientation & Mobility Instruction in Home and Community Environments for Students with Visual Impairments! ---Tell your legislator to support AB 947. For more details, click here

Keep the Promise Capitol Rally to Save Lanterman Act Services and Fund the Direct Support Workforce for Californians with Disabilities. --- Tell your legislator to support funding for services and supports for Californians with Intellectual and Developmental Disabilities. To get involved, click here.

Special Education Programs: Family Empowerment Centers on Disability (AB 236) --- This bill revises and recasts requirements for Family Empowerment Centers on Disability in 32 regions throughout California. The centers provide training and services to children and young adults with disabilities and their families. Find out more here. 

Trump Administration Ordered To Reinstate Special Ed Rule --- The ruling comes in a case brought by disability advocates last summer after the Trump administration finalized a two-year delay of the rule. Learn more here. 

Trump Proposes Cuts To Medicaid, Other Disability Programs --- With his latest budget proposal, the president is calling for significant changes to Medicaid that advocates say would have big consequences for people with disabilities. Learn more here

Featured Articles

National Association of Councils on Developmental Disabilities
People with Disabilities Lose As Programs Shrink or Close in Costly Bay Area
State and federal funding hasn’t matched rising rents or wages, the leaders of nonprofit organizations and for-profit business serving people with disabilities say. Learn more here.

March is Developmental Disabilities Month
Campaign seeks to raise awareness about the inclusion of people with developmental disabilities in all areas of community life, as well as awareness to the barriers that people with disabilities still sometimes face in connecting to the communities in which they live. Learn more here.

In the News

Could the Fallout from the Admissions Scandal Hurt Kids with Disabilities
One of the ways these parents allegedly gamed the system to benefit their children involved faking learning disabilities to get accommodations on standardized college admissions tests. Find out more here.
Governor Newsom appointed practicing pediatrician and director of health and social impact, Mark Ghaly. Learn more here.
Youth with Disabilites Have Greater Risk for Peer Harrassment Via Technology 
Youths with a learning disability were more likely to experience harassment in person, while youths with a physical disability were more likely to experience harassment via technology. Learn more here.

Some Children Can 'Recover' from Autism, But Problems Often Remain
In a new study, researchers have found that the vast majority of such children still have difficulties that require therapeutic and educational support. Learn more here

With Proposal, State Considers Apartments Over Costly Group Homes
Gov. Ned Lamont’s (CT) budget proposal would pay for 70 new apartments over two years for people with intellectual disabilities — a bit of relief in a state that has relied heavily on more costly group homes and residential campuses. Learn more here.
The Shrinking Number of Special Ed Teachers Adds to Schools' Pressures

The number of special education teachers nationally has dropped by more than 17 percent over the past decade, a worrisome trend in a career path that has seen chronic shortages for years. Find out more here.

There is a Better Way to Teach Students with Learning Disabilities

This knowledge of the brains’ continual potential to change has led scientists and educators to take a wholly different approach to students with disabilities. Learn more here

Webinars & Conferences

Upcoming
Disability & Sexuality Part 4: "Understanding Gender & Sexual Diversity in Youth/Young Adults with Disabilities"               
Wednesday, March 27th 12-1pm (PST) --- This webinar will explore terminology and key concepts related to gender and sexual diversity in youth/young adults with disabilities.

Using Telemedicine for Pediatric Behavioral Health Services           
Thursday, March 28th 11-12pm (PST) --- Speakers will discuss telepsychiatry development steps, identify reimbursement solutions, and describe keys to program maintenance. Register here.

Maximizing System-Level Data to Address Medical and Social Complexity in Children 
Tuesday, April 2nd 11-12pm (PST) --- Learn how the state’s standardized approach has helped inform priority areas, potential policy improvements, investments, and partnerships in support of children with health complexity. Register here. 

What is the Whole Child Model                                                                
Wednesday, April 17th 1-2pm (PST) --- If your child is covered by both California Children’s Services (CCS) and Medi-Cal, learn more on how their CCS benefits will be administered differently under the Whole Child Model. Register here.
DMHC Seeking Members for Task Force on PBM Reporting
The Department of Managed Health Care is seeking dynamic and solutions-oriented healthcare professionals and advocates to serve on the legislatively mandated DMHC Task Force on Pharmacy Benefit Management (PBM) Reporting. Application due April 19th. Learn more here. 

2019 Family Leadership Conference (DC)
                                            
Wednesday- Friday, May 8-10 --- The 2019 Family Voices Leadership Conference will bring together a diverse community of family and youth leaders, family members, professional partners, and other stakeholders from across the country. Register here

National Autism Conference (Pennsylvania)                                                 
Tuesday-Wednesday, June 11th -12th --- We focus on educating and coaching for family members and professionals in evidence-based practical strategies. Register here. 
CCS Transition to Adulthood Workgroup to Meet 
The next meeting of the California Children’s Services (CCS) Transition to Adulthood Workgroup is scheduled for March 27. Call-in and registration information is available on the CCS Advisory Group website. The agenda and meeting materials are scheduled to be posted prior to the meeting. 

Resources

For more information contact emercado@familyvoicesofca.org.

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