Tips From the Ependymoma Community

Image three young ladies standing outside together, with a butterfly gently in hand.

Tips From the Ependymoma Community for Children and Adults Starting Radiation Treatment

Radiation treatment can be recommended for patients with ependymoma, but it can be scary and present challenges and concerns that are important to discuss with your medical team. We asked the ependymoma community to share useful tips for people starting radiation treatment and received good feedback from survivors, parents, and care partners. Read through their creative ideas and words of encouragement for inspiration.

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Image of a butterfly, cut out and created by a survivor.

Giving Season is Here

Your generous support allows us to continue our mission of improving the care and outcome of people with ependymoma through community support and research efforts. Please reach out to us if you have any questions about becoming a recurring donor, planning for end-of-year giving, or hosting your own fundraising event.

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Dwight poses at a Georgia Bulldogs football game.

Inspiration Story:
The Experience

Dwight lives with his wife in South Carolina on five acres. In this Inspiration Story, he writes about his experience with ongoing symptoms that eventually lead to an ependymoma diagnosis. As a man in his early eighties, Dwight describes in detail how he navigates survivorship to the best of his ability.

Read Dwight’s Story »

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.

Make A Gift

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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CERN Foundation PO Box 217 | Zionsville, IN 46077 US

Tips From the Ependymoma Community