CERN Educates Patients and Care Partners After Diagnosis

Image of Jess and her husband, standing together on a fall day while hiking on a trail.

“CERN Foundation Gave Me a Roadmap”

“I wouldn't know half of what I know about my diagnosis if it wasn't for CERN. They gave me a simple roadmap that can lead to big changes in my recovery. When I was diagnosed with ependymoma, I metaphorically felt like I was drowning. Now I feel like I have a life jacket on, and I'm able to swim a little bit. CERN gave me the oomph to keep on going.

For that first year, I felt so alone. I felt like a medical mystery, and that made it hard. Once I found out through CERN that there are others dealing with similar pains, and they're living their life, it was a really powerful experience for me. It helped me take steps inside to be able to share my story.” — Jess C.

Your gift today helps ensure that CERN can continue to equip patients and care partners with the tools and resources they need throughout their ependymoma experience.

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Image of a butterfly over the title slide of the video series - Ependymoma Essentials.

New Ependymoma Essentials Video Released

Ependymoma Essentials - Episode 3: An Update on the ACNS0831 Clinical Trial (Feat. Drs. Smith, Foreman, and Ellison interviewed by Tamiko Toland and Kim Wallgren)

The purpose of this episode is to learn more about the status of the ACNS0831 trial, understand the significance of the trial to pediatric ependymoma research, and get clarity on how the results might impact the ependymoma community now and in the future.

Watch Now »

Image of Finn and his mom, Sharon, reading a program together at a CERN Foundation event.

CERN Foundation Year-End Report

We are pleased to share our 2022 Year-End Report with you. This report includes a message from CERN and highlights the projects and programs made possible because of volunteers, survivors, care partners, and donors like you. Learn how your support made a profound impact this year.

Read the Report »

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma.

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The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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