Watch Now: Ependymoma Essentials

An image from the video - Ependymoma Essentials. Watch now.

Through all stages of diagnosis, treatment, and after care, families dealing with ependymoma seek out education specific to the disease. With this in mind, the CERN Foundation, a program of the National Brain Tumor Society, is sponsoring a new educational video series, Ependymoma Essentials, to communicate reliable and trustworthy information in collaboration with leaders in the ependymoma community. The first episode, Newly Diagnosed Pediatric Ependymoma, was a natural place to start the series to help families caring for a child recently diagnosed with ependymoma. It features Dr. Amar Gajjar, Director of Neuro-Oncology at St. Jude Children’s Research Hospital in Memphis, TN. Dr. Gajjar, a leader among international pediatric neuro-oncologists, cared for Toland’s son starting in 2009 and has served as a medical advisor to the CERN Foundation since 2006 when it was first started. The information communicated in the video is not intended to be medical advice or replace guidance from your medical team. The information can be used to help understand a situation or to spark questions to ask current providers.

Watch Episode 1: Newly Diagnosed Pediatric Ependymoma.

Dr. Kristian Pajtler Fellowship Summary Report

Funding from the CERN Foundation to Dr. Pajtler’s laboratory at KiTZ Hopp Children’s Cancer Center in Heidelberg, Germany helped support the discoveries in the field of ependymoma research highlighted in seven manuscripts that were published in high-profile scientific journals. Much of Dr. Pajtler’s work aimed to investigate the diversity of ependymoma as a basis for future improved diagnostic accuracy and target identification. Further refined and improved molecular classification of ependymoma may provide diagnostic and prognostic information beyond histology and facilitate patient stratification in future clinical trials. The ependymoma scientific fellowship was fully funded by support from the community to the CERN Foundation, a program of the National Brain Tumor Society.

Read the Full Report.

Support the Ependymoma Fund for Research and Education

Your support is critical to ensuring the urgent, unmet needs of the brain tumor community continue to be heard and addressed. Together, we can advocate for patients and families today, while fueling research with the potential to become the breakthroughs of tomorrow. Designate your gift to directly support the Ependymoma Fund for Research and Education with the CERN Foundation.

With the holidays approaching, we welcome you to download this free printable butterfly gift tag or ornament that you can personalize to share with your loved ones. Be creative! Decorate your #CERNbutterfly!

Give Now

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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