pALS Newsletter - Spring 2025 |
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Valentine's Day is also this week, and we love a good LOVE story! Wether it is a partner, a spouse, a caregiver, a family member, a close friend, or even your beloved pet, we want to hear about someone you love.Â
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Click below to send us a few photos and a short paragraph about who you love and why - we'll feature your submissions on Team Gleason's Instagram on Valentine's Day!
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Get Involved with the Community
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Share Your Voice with the
Speech Accessibility Project |
Now recruiting individuals with ALS and PLS to help speech recognition tools understand diverse voices.
Artificial intelligence and machine learning allow people to use speech recognition, such as voice assistants or translation tools, to operate technology using their voices. Researchers have trained an automatic speech recognition tool using the project's recordings.Â
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You can be a part of this critical research
by sharing your voice with the Speech Accessibility Project!
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The University of Illinois Urbana-Champaign will safeguard your personal information as a part of this project funded by Amazon, Apple, Google, Meta, and Microsoft.
Record your speech from the comfort of your home. Mentors from Team Gleason are ready to help you through the participation process.
Participants living with ALS or PLS can earn up to $180.
Caregivers can earn up to $90 as well.
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The journey toward greater autonomy starts here—join the Synchron BCI Community today. |
The Synchron BCI Community brings together people living with ALS, care partners, and clinicians to explore how the Synchron BCI (brain-computer interface) is being designed to provide autonomy to people living with limited mobility. Stay informed about groundbreaking advancements, upcoming research opportunities, and more.
Visit synchronbci.com/tg to receive news updates, local event alerts, and exclusive educational content about BCI technology.
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Join the National
ALS Registry |
The National ALS Registry is a crucial initiative designed to empower individuals living with Amyotrophic Lateral Sclerosis (ALS) to actively participate in groundbreaking ALS research.
Together, we can turn today’s research into tomorrow’s breakthroughs.
Join the National ALS Registry and be a driving force in the quest for a world without ALS.
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Be a Crescent City
Classic Charity Runner |
Join Team Gleason on Saturday, April 19, 2025, as we celebrate 10 years of participating Cresent City Classic!
Anyone can sign up to run, jog, or even stroll, either in person or virtually, while raising funds to support Team Gleason.
With your help, we can become the largest charity team! Sign up by Wednesday, March 21st to receive a Team Gleason CCC T-shirt!
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Team Gleason Community Events
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Steve Gleason's Game Changer Gala |
Team Gleason and Answer ALS proudly hosted the Game Changer Gala raising funds for ALS research & empowerment. Team Gleason strives to provide solutions for ALS now. Answer ALS is the single largest coordinated & collaborative effort to end ALS in the history of the disease. Among those honored as Game Changers were actor Jude Law, Drew Brees, Sean Payton, Arthur M. Blank, John Driskell Hopkins, pALS Dale Clark, Her ALS Story, and more.
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Gleason Celebrity
Golf Classic |
On February 6th, Team Gleason celebrated the Gleason Celebrity Golf Classic at Bayou Oaks in New Orleans!Â
The classic was hosted by a celebrity committee including Steve Gleason, Thomas Morstead, Sean Payton, Chris Berman, and many more!Â
The event included a round of golf with 18 holes, a hole in one contest, a putting green contest, and delicious food and drinks served throughout the event. Golfers were cheered on by students from St. Michael Special School.
Team Gleason Board Member Tommy Capella, opened the event with a welcome speech, followed by words from Sean Payton and a check presentation from Thomas Morstead for his Punt for ALS campaign. Proceeds from the event benefited Team Gleason Foundation.
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| Super Bowl LIX
Adventures
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Team Gleason was thrilled to send three ALS families on a Super Bowl LIX Adventure in our very own host city of New Orleans!
During their Adventure, Wendy, Carly, and Tyann visited Steve Gleason’s Rebirth Statue, celebrating his blocked punt in 2006.
After arriving at the Superdome, the crew met with Steve and Team Gleason crew on the field before the big game!
Tyann had waited over a year for this Super Bowl Adventure. Wendy previously worked for the Eagles before being promoted to the NFL headquarters and was excited to show her family what she worked so hard for. Carly, who was a massive Eagles fan, got to see her beloved team take home the Lombardi Trophy!Â
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Download the Team Gleason
Power Wheelchair Guide
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Have you seen our Wheelchair Guide powered by Numotion?
The Team Gleason Power Wheelchair Guide is focused on providing individuals living with ALS the information needed to feel empowered to advocate for themselves during the wheelchair evaluation and beyond.
This guide will help an individual find the wheelchair that fits their unique needs and desires.
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Join our next Team Gleason Virtual Zoom Gathering for both those living with ALS and their caregivers.Â
Coast to Coast - the first Thursday of every month, beginning Thursday, January 2nd at 12 o'clock pm, CST. This gathering is primarily for pALS (persons living with ALS) but often their spouse will join and certainly is welcome to join.
Caregivers - the 2nd Thursday of every month, beginning Thursday, January 9th at 1 o'clock pm, CST. This gathering is especially for our caregivers, as the name would indicate.
Young Adults - the 1st Monday of every month, beginning Monday, January 6th at 7pm CST. This gathering is for adult children whose parent is living with ALS. Â
Healing Hearts - the first Monday of every month, beginning Monday, January 6th at 1 o'clock pm, CST. Â
Members living in Louisiana and Mississippi can also email Kelly Viator for information on a weekly meeting group and a bi-monthly meeting group.
We hope you can join us! If you would like to be invited to participate in any of these gatherings, please email kelly@teamgleason.org.
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Returning Equipment Empowers the Community! |
Did you know? Portable power wheelchairs, Zoom recorders, and more are managed through Team Gleason's loaner closet! Once you are no longer in need of your Team Gleason equipment, we encourage you to ship it back to Team Gleason so we can repurpose it for another family.
Returning is easy! If we are able to accept the return or donation, Team Gleason will email you prepaid shipping labels for the boxes. This allows us to continue to provide independence and empower the community!
Save your box! Now accepting portable power wheelchair returns. Keeping the box that it is shipped in ensures a quick and cost-effective method of return when needed.
To return or donate equipment please contact returns@teamgleason.org so we can best assist with the logistics of the return or donation.
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