NETRF Funds Nearly $2 Million for 12 New NET Research Projects

NETRF has announced funding for 12 new NET research projects, representing the most promising and diverse approaches to improve the understanding and treatment of NETs.

“It is impactful and inspirational to be able to bolster the NET researcher community to focus on understanding neuroendocrine cancer,” said Elyse Gellerman, chief executive officer of NETRF. As the leading private global funder of NET research, NETRF has funded two and a half times more NET investigators than the National Institutes of Health (NIH).

Read more about this exciting class of researchers here.

NETWise Episode 23: Parenting with NETs

As we wrap up our mini-series about adjusting to the new normal of your life with NETs, we wanted to devote an episode to one of the most emotionally challenging situations that might confront a person who is newly diagnosed -- learning you have cancer while raising children. Parenting is hard enough, but add in a serious illness and it can be downright overwhelming. If this is the situation you find yourself in, we hope this episode will help you find the strategies and encouragement you need to take the best care of yourself while also being present and supportive for your children. Listen here.

After you listen, you can test your knowledge of Parenting with NETs by taking the LACNETS quiz here.

Carcinoid Syndrome & Your Heart

It is American Heart Month, and did you know Carcinoid Syndrome can affect your heart? Carcinoid heart disease can affect 20-50% of people with carcinoid syndrome. It is possible that this complication may not cause any symptoms for a time, but can still be causing damage. Signs and symptoms of carcinoid heart disease include fatigue and shortness of breath. Carcinoid heart disease can eventually lead to heart failure. Surgical repair of damaged heart valves may be an option. Watch this video from NETRF’s virtual Patient Education Conference where Dr. Heidi Connolly of the Mayo Clinic discusses carcinoid heart disease.

Reaching Thrivership

NETRF’s Director of Patient Education, Jessica Thomas, created a short series of videos about NET Thrivership. “Thrivership is defined as identifying what you need in your personal journey to thrive after NET cancer treatment and what survivorship looks like for YOU," explains Thomas. Watch here as she discusses the importance of finding a NET-free zone. Additionally, NETRF’s NETWise podcast series offers two podcasts focused on adjusting to your new normal and navigating your new normal after a NET diagnosis.

Send a Note of Thanks to Your NET Hero

Everyone deserves recognition and appreciation for doing their job well, and that certainly includes all the amazing NET health care providers. In honor of Doctors' Day 2023, we invite you to celebrate the commitment and care of your NET hero.

Now through March 30th, join us in showing your support and appreciation to your health care hero. You can make an online gift in honor of a health care provider who has made a difference in your life. Your donation will go toward funding essential research of improved treatments for neuroendocrine cancer. We’ll notify your provider about your thoughtful donation with a letter of gratitude and a Certificate of Applause. Click below to donate today!

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The CureNET Project holds 1st annual Winter Gala

Last September we introduced to you to Brittany Holzhauer and her family who started The CureNET Project after Brittany was diagnosed with Stage IV pNETs in 2021.

Brittany and her siblings launched The CureNET Project to raise money to fund NET research, raise awareness about NETs and assist other families in the NET community facing financial challenges.

They generously donated $30,000 to NETRF, raised at their first golf tournament last August.

Next month, The CureNET Project will hold its first annual Winter Dinner, a night of fun in Toledo, Ohio, with entertainment provided by Piano Wars! dueling pianos. This annual dinner will serve as the primary fundraising event for the annual CureNET Project Grant given to a family affected by NETs to ease the financial burden of seeking treatment and care. Remaining funds raised will support NET research with NETRF.

If you're close to Toledo, Ohio, please consider attending this event on March 18th to support Brittany and her community in their efforts to fund NETRF research and support other families in their NET journeys.

Special thanks to Ipsen for their sponsorship

of this E-Update.

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The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.

NETRF is a 501(c)(3) organization. All contributions are tax-deductible to the extent allowed by law. To learn more,
view our Audited Financial Statements and IRS Form 990.

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