Dear Friends,
We are excited to invite you to participate in the new Carcinoid Syndrome Impact Survey, which is designed to help better understand the impact that carcinoid syndrome has on patients’ lives, while also exploring physicians’ treatment approaches.
This survey for patients and caregivers in the United States is groundbreaking because it brings together the collective efforts of seven leading national and regional neuroendocrine tumor patient advocacy and patient groups:
- Carcinoid Cancer Foundation (CCF)
- Neuroendocrine Cancer Awareness Network (NCAN)
- Neuroendocrine Tumor Research Foundation (NETRF)
- Healing NET Foundation
- Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
- NorCal CarciNET Community
- Big Apple NETs
Working together, we hope to spotlight the significant effects that carcinoid syndrome has on patients’ lives, while raising awareness and understanding in the physician communities about this rare syndrome.
We are extremely grateful to you for your participation. In sharing your individual and personal experiences, you are helping to elevate both understanding and awareness about what it’s like to live with carcinoid syndrome.
