Understanding your NET DiagnosisWhat's the difference between tumor grade, stage, and site? And why do they matter? Shock, fear, and anxiety accompany a neuroendocrine tumor diagnosis. On top of the emotional response comes cognitive confusion. A blizzard of medical terms, complicated tests, and different classifications start flying around during every doctor's visit. We've assembled a go-to reference to help you understand what these terms mean. (MORE)
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Practical Tips for the Newly Diagnosed
NET Research Foundation Board Member Josh Mailman, who works tirelessly in NET patient support and advocacy as president of NorCalCarcinet, gives a talk on his lessons learned on the front lines as a NET patient advocate and survivor. Hear Josh explain why it is important to "enjoy every sandwich." (MORE)
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In Search of a BiomarkerNETRF has funded a study of patient data to look for shared biomarkers among NET patients who participated in a promising phase II clinical trial of cabozantinib, an approved treatment for kidney and thyroid cancer. Principal investigator Dr. Jennifer Chan, Dana-Farber Cancer Institute, Boston, MA, tells us what we can hope to learn about this emerging agent and when we might see it advance. (MORE)
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FDA Approves New Treatment for Pheo/Para NETsUS FDA has approved iobenguane I 131, an intravenous radio-therapeutic, for the treatment of unresectable, locally advanced or metastatic pheochromocytoma or paraganglioma in adult and pediatric patients 12 years and older. (MORE)
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Having Surgery?
There is a simple way to advance cancer research. Donating tissue from a tumor that has been removed during surgery provides scientists with essential tools for conducting laboratory research. It can be simple, free, and easy to do. Learn about a program bringing together leading research institutes, NETRF, and Pattern.org. (MORE)
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A Blessing in Disguise?David Van Bibber approaches life differently following his neuroendocrine tumor diagnosis in his early 30s. As a husband, father, and community member, David views life through a different lens now and embraces each and every day. His new normal involves i nvesting more deeply in his health, his family, and his community. As a result, David finds a deeper joy in his daily life, causing him to ask whether NETs was "a blessing in disguise"... (MORE)
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Preparing for Disaster
Natural or man-made disasters often occur with little or no notice. Being prepared for a disaster is important for everyone, but cancer survivors need to go beyond preparing for these events—they must also prepare for the disruptions to their health care caused by a disaster. (MORE)
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Eating Better to Feel Better
It can be challenging to prepare nutritious meals and snacks when you feel tired and weak. You may also be coping with nausea and/or diarrhea. Your sense of taste may have changed. But what, when, and how you eat can help to improve your response to cancer treatment and help ease burdensome symptoms and side effecst. Learning to eat the proper nutrients can mean fewer complications, faster recovery, and improved strength and energy. (MORE)
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Access Issues to the Gallium 68 Scan Patients in different areas of the U.S. are reporting difficulties accessing a relatively new nuclear medicine imaging technique known as the Gallium 68 (Ga-68) scan. These reports prompted a member of the NETRF team to take action. (MORE)
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Family Foundation Makes Gift
We are pleased to announce a $100,000 grant from the Karpus Family Foundation, Rochester, NY. The grant will help NETRF-funded researchers discover insights into the life cycle of neuroendocrine cancer cells — knowledge that can be translated into improving the precision and efficacy of NET therapies. (MORE)
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Working Toward a CureTogether we are getting closer to improved treatments and ultimately cures. To continue on in the fight against NETs, we are counting on your support. When you donate to NETRF, you should know your gift is being maximized. Last year, 94 cents of every donated dollar went to our research and patient education programs. Please consider making a gift to NETRF now.
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How your Gift Supports Early Career ScientistsAs a rare tumor type, it is important to continually recruit new investigators to study NETs. Learn how NET Research Foundation uses pilots grants and other funding mechanisms to grow the field of physicians and scientists working to cure NETs. Your gift can help expand the number of people focused solely on NETs. (MORE)
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