Register for KNOW YOUR NETs Virtual Conference!
Register today for KNOW YOUR NETs Virtual Conference on November 7, 2021. Presented by NETRF and UChicagoMedicine, our conference focuses on the topics you told us are most helpful to you. Learn more about the latest in medical and surgical treatments, treatment sequencing, research updates, complementary care, practical advice for living well with NETs, and a special NETs 101 for the newly diagnosed. We hope you will join co-chairs Dr. Xavier Keutgen and Elyse Gellerman and our expert panels for this free and informative conference!
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New Models to Study Neuroendocrine Tumors
Dr. Patricia Dahia, of the University of Texas Health Science Center at San Antonio, is developing three-dimensional models of pheochromocytomas and paragangliomas in the laboratory to potentially discover biomarkers of tumor aggressiveness and drug sensitivity. Hear from Dr. Dahia about this important NETRF-funded research in this new video.
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Research Spotlight: Rod Hicks, MD
Rodney Hicks, MD, of the University of Melbourne, is leading a research project to study why some patients respond well to PRRT, while others are resistant to this type of therapy. Supported by a NETRF Petersen Accelerator Grant, Dr. Hicks and his team have now tested a combination of PRRT and a therapy that can block DNA repair. (READ MORE) about this promising research.
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New Clinical Trial on Lutathera® in Adolescents with NETs
A phase II clinical trial has launched to study Lutathera® in adolescents with gastroenteropancreatic neuroendocrine tumors (GEP-NET), pheochromocyomas and paragangliomas (PPGLs). The multicenter trial will study the safety and dosage of Lutathera (Lutetium [177Lu] oxodotreotide/dotatate) in patients between 12 to 17 years of age with somatostatin receptor-positive GEP-NETs and PPGLs. (READ MORE)
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| NETRF Announces Changes on its Board of Scientific Advisors
NETRF wishes to thank Dung Thi Le, MD for her long-time service on the Board of Scientific Advisors (BOSA), and welcomes Jennifer Eads, MD, as the BOSA’s newest member. Dr. Le served on the BOSA for seven years, during a period of tremendous growth in NETRF research funding. Dr. Eads is an associate professor of Medicine at the University of Pennsylvania, with research interests in DNA repair and novel therapeutics related to neuroendocrine tumors. (READ MORE)
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NETWise Episode 16: NETs and Nutrition
The new episode of NETWise, NETs and Nutrition, takes a close look at the relationship between food and neuroendocrine tumors. There are many ways that food can improve or aggravate symptoms. Learn about how a neuroendocrine tumor can affect good nutrition and why what may be a healthy diet for some people may not be the best for people with NETs. Hear practical advice from medical experts and patients who have identified their food triggers and not given up all the foods they love. (LISTEN NOW)
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Your Guide to a Successful Fundraising Event Do you have an exciting idea for a fundraiser? Make it happen! Check out NETRF's Event Guide to help you plan a successful volunteer-run fundraising event. Learn about what you need to do, access our materials, and see what other fundraisers have done in the past!
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Join Cole's Team Jennifer Morse, whose 14- year-old son Cole died from neuroendocrine cancer, is turning her grief into action. She is helping NETRF raise funds for vital research to develop new treatments and improve quality of life for people with NETS. Read Jennifer’s tribute to her son and find out how you can Join Cole’s Team to honor or remember someone you love.
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Biking for Debbie This is the 8th year that Vicki Dailey has organized Biking for Debbie in honor of her sister, Debbie Brickner, who continues to persevere through her NET journey. Riders traveled from Ashland, Maryland to York, PA on September 11th and 12th to raise funds for NETRF. READ MORE about this inspiring event.
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Welcome Jennifer Long! Jennifer Long has joined the NETRF team as Science Writer. Jennifer has specialized in medical, healthcare, and research writing and communications strategies for more than 25 years. She spent 22 years at The Children’s Hospital of Philadelphia Research Institute, where she ultimately served as the director of Research Communications. Jennifer has a bachelor’s degree in English and mass communications from Towson University as well as master’s degrees in journalism from Temple University and biomedical writing from the University of the Sciences in Philadelphia. We are happy to welcome her to the NETRF team!
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| WE'D LIKE TO EXTEND A SPECIAL THANKS TO ADVANCED ACCELERATOR APPLICATIONS, A NOVARTIS COMPANY,FOR SPONSORING THE SEPTEMBER EDITION OF NETRF'S eUPDATE.
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