Share Your Story on Ependymoma Awareness Day
As a part of Ependymoma Awareness Day, the CERN Foundation and the National Brain Tumor Society invite you to gather virtually with other ependymoma survivors and care partners to Share Your Story. This special opportunity is designed to inspire and empower, serving as a reminder that having a rare disease does not mean you are alone.
To participate, you need to register for one session that best fits your diagnosis
: Adult, Pediatric, or Spine. If you would like to speak, we ask you to keep your story to five minutes or less to accommodate other participants. If you prefer to not speak and listen only, please select that option during registration. The Share Your Story sessions will be hosted on Zoom. You will receive specific login details shortly before the session starts. Slots are limited, so please register soon.
2022 Ependymoma Awareness Day, May 10 - Schedule of Events
- 1 PM EDT - Ependymoma Awareness Day Virtual Program - Livestreamed on Facebook and online
Note: The EAD program is available to everyone, so there is no need to register.
- 2 PM EDT - Share Your Story: Session 1 - Adult Ependymoma (Brain)
- 4 PM EDT - Share Your Story: Session 2 - Pediatric Ependymoma (Brain and Spine)
- 6 PM EDT - Share Your Story: Session 3 - Adult Ependymoma (Spine)