Show Your Support for Ependymoma Awareness Day!

Image. A participant at Ependymoma Awareness Day hold a beautiful butterfly infront of them.

Support Ependymoma Awareness Day

In recognition of Ependymoma Awareness Day, butterflies around the world are released during May to honor loved ones with ependymoma, recognize care partners and medical workers, and support ependymoma research efforts. The delicate and beautiful butterfly represents the spirit of the ependymoma community as a symbol of hope through change.

Support the Ependymoma Awareness Day campaign by making a donation or creating your own personal online EAD fundraising page!

Image. A little girl draws a butterfly with a sign next to her that says share your story.

Share Your Story on Ependymoma Awareness Day

As a part of Ependymoma Awareness Day, the CERN Foundation and the National Brain Tumor Society invite you to gather virtually with other ependymoma survivors and care partners to Share Your Story. This special opportunity is designed to inspire and empower, serving as a reminder that having a rare disease does not mean you are alone.

To participate, you need to register for one session that best fits your diagnosis: Adult, Pediatric, or Spine. If you would like to speak, we ask you to keep your story to five minutes or less to accommodate other participants. If you prefer to not speak and listen only, please select that option during registration. The Share Your Story sessions will be hosted on Zoom. You will receive specific login details shortly before the session starts. Slots are limited, so please register soon.

2022 Ependymoma Awareness Day, May 10 - Schedule of Events

1 PM EDT - Ependymoma Awareness Day Virtual Program - Livestreamed on Facebook and online
Note: The EAD program is available to everyone, so there is no need to register.
2 PM EDT - Share Your Story: Session 1 - Adult Ependymoma (Brain)
4 PM EDT - Share Your Story: Session 2 - Pediatric Ependymoma (Brain and Spine)
6 PM EDT - Share Your Story: Session 3 - Adult Ependymoma (Spine)

Register to Share Your Story!

Butterfly Release in Bethesda, MD

Ependymoma families are welcome to join us for the Brain Tumor Awareness Month Butterfly Release Ceremony hosted by the National Brain Tumor Society and the CERN Foundation on Sunday, May 1, at 4:30 PM. Portions of this event will be recorded and featured in the 2022 Ependymoma Awareness Day virtual event.

Registration Required.

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Under “Direct My Gift to Support,” remember to select the Ependymoma Research and Education Fund.

Make A Gift

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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CERN Foundation PO Box 217 | Zionsville, IN 46077 US