Patient Experience Newslink

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PATIENT EXPERIENCE NEWSLINK is The Beryl Institute's monthly publication featuring important policy analysis, publications, research, press and current affairs to enhance and inform your work. POLICY   Right-To-Try Doesn’t Help Patients, Hurts FDA, Drugmakers  The Right-to-Try bill, which amends the Federal Food, Drug, and Cosmetic Act, removes from FDA the authority to oversee access by terminally ill patients to early stage investigational therapies. Under the new law, FDA will no longer have authority over the administration of “eligible” investigational therapies to “eligible” patients. (Bloomberg Law, May 2018) Consumers Brace For Premium Hikes While Lawmakers Grasp At Remedies   As some insurers angle for hefty premium hikes and concerns grow that more Americans will wind up uninsured, the federal health law is likely – once again – play big in both parties’ strategies for the contentious 2018 election. (Kaiser Health News, May 2018) FDA to Collect Patient Experience Data The Food and Drug Administration has embarked on an effort to include “meaningful” patient experience data in its decisions on new drug approvals and post-marketing surveillance. The idea is to supplement clinical trial data with input from patients that would be collected and submitted by drug companies, caregivers, research teams, and disease-focused groups. (Pharmacy & Therapeutics, June 2018) PRESS 3 Strategies to Boost Patient Experience and Get Paid at the Same Time   The patient experience and the financial health of a hospital or health system are more closely connected than ever before as the industry makes the shift toward value-based payment systems and patients shoulder more medical costs. (Becker's Hospital CFO Report, June 2018) Population Health: The ‘North Star’ of the Triple Aim It was the Institute for Healthcare Improvement that introduced the Triple Aim in 2008 to help health care organizations address challenges like chronic disease management and care coordination in ways that could be replicated across the country. (US News, May 2018) Thoughtful Healthcare Mobility Deployments Improve Patient Satisfaction As healthcare organizations begin planning their point-of-care engagement strategies, they can learn from the examples set by several of the field’s most prominent trailblazers. Moving more deeply into the field, healthcare providers will soon discover that patient engagement isn’t a single technology. (HealthTech, May 2018)   Sponsored  Improving Staff Engagement and Patient Experience with Real-Time Feedback Just as an automobile passenger’s safety is dependent on driver engagement, so too is patient wellbeing dependent on healthcare workforce engagement. At a time of increasing demands on staff and providers, what steps can be taken to ensure an engaged workforce? The "5 Steps for Restoring Sanity in the Healthcare Workplace" offers practical strategies to engage employees and help ensure exceptional patient experiences. (TruthPoint, June 2018) PUBLICATIONS   Self-Admissions Can Improve Patients’ Ability to Manage Their Illness Danish psychiatric patients have been able to admit themselves to the psychiatric ward since 2014. It gives them a sense of safety and a better quality of life. (ScienceNoridc, June 2018) Communication Among Team Members Within the Patient-centered Medical Home and Patient Satisfaction With Providers: The Mediating Role of Patient-Provider Communication   The Patient-centered Medical Home uses team-based care to improve patient outcomes, including satisfaction. The quality of patients’ communication with their primary care providers is a key determinant of patient satisfaction. (Medical Care, June 2018)   Provider and Patient Satisffaction with the Integration of Ambulatory and Hospital EHR Systems   The installation of EHR systems can disrupt operations at clinical practice sites, but also lead to improvements in information availability. We examined how the installation of an ambulatory EHR at OB/GYN practices and its subsequent interface with an inpatient perinatal EHR affected providers’ satisfaction. (Journal of the American Medical Informatics Association, May 2018)   FROM THE INSTITUTE Radical Support After Adverse Events We live in a culture that often expects perfection of our healthcare professionals and, when a mistake is made, we don’t always have tools or skills to effectively support the person as they process and grieve. No matter what, we must find ways to address isolation and provide better support to those facing questions of their own worth after an adverse event. (June 2018) Techniques for Bringing Compassionate Communication to Telehealth Interactions Dr. Anthony Orsini, BBN, explains how telemedicine will play a large part in the future of healthcare and emphasizes the importance of learning proper techniques in compassionate communication in order for healthcare providers to build relationships through video conferencing. (May 2018) A New Framework for Putting Patients at the Center of Digital CARE Niall O’Neill, Oneview Healthcare, discusses the four fundamental principles of digital CARE that create the framework to drive today’s digital solutions so we can adapt quickly to healthcare consumerism, put patients at the center of care and create a meaningful, interoperable platform to enable the future. (May 2018) FROM PATIENT EXPERIENCE JOURNAL VOL 5, ISS 1 A framework for conceptualizing how narratives from health-care consumers might improve or impede the use of information about provider quality Little research has examined how narratives might improve or impede the use of information about the quality of providers’ performance. This article describes a conceptual framework for examining mechanisms by which narrative information might influence consumer judgments and decisions about providers. Patients’ stories of encounters with doctors: Expectations and anxieties This study contributes to the understanding of how patients experience encounters with doctors and is based on the gathering and analysis of subjective stories of 'healthy' patients who live in Israel about their encounters with doctors. How patients view their contribution as partners in the enhancement of patient safety in clinical care This article helps understand the perspective of patients as partners regarding their roles, as well as their relatively untapped potential in detecting and limiting adverse events for patient safety. The patient experience with shared decision-making in lung cancer: A survey of patients, significant others or care givers Majority of lung cancer patients want to make difficult decisions using a shared decision-making process. This article exlpores the patient perception that this is not occurring often enough and that they are not sure that they have all the information necessary to make that difficult decision.  > View all articles in PXJ Vol 5, Iss 1 Join the discussion on patient experience topics in The Beryl Institute LinkedIn group. Forward to a friend or share with colleagues by clicking the social media links at the top of this e-mail. Was this message forwarded to you? Sign up for Patient Experience Newslink. The Beryl Institute provides Patient Experience Newslink to share a broad range of current patient experience news and headlines. The Institute does not endorse the views expressed via these links or any products or services offered. Special thanks to our Supporting Partners. These organizations have contributed to the future of the field by supporting the continued growth of The Beryl Institute as the global community of practice on improving the patient experience. connect with us: The Beryl Institute | 1560 E Southlake Blvd, Ste 231 | Southlake, TX 76092 www.theberylinstitute.org

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