January 2025

The Neuroendocrine Tumor Research Foundation has announced our newest neuroendocrine cancer research grant recipients. The 10 investigators receiving awards are studying the most promising scientific approaches to understanding and treating neuroendocrine cancer. Funding for these grants totals $2 million, bringing NETRF’s all-time investment in research to $39.8 million. Read more about the future of neuroendocrine cancer research.

Thanks to your generosity throughout 2024, we are thrilled that our next slate of funded research projects is launching this month. These innovative studies, led by top scientists worldwide, are focused on advancing early detection, developing new treatments, and unlocking cures for neuroendocrine cancer.

Every breakthrough starts with you. Your support powers these critical initiatives, creating hope for patients and their families. Together, we’re transforming research into results—accelerating progress toward treatments that save lives and improve quality of life.

Thank you for making this possible. Stay tuned this year as we share updates on the incredible work your contributions are making happen!

Happiness is something that can be difficult to find in life, no matter what. Having a rare cancer can make it infinitely harder. In this episode of NETWise, we're going to talk about what happiness means, and how cancer can affect the way we think about it. We'll also talk about the things we all can do to be more resilient.

Sharing a diagnosis is a deeply personal decision and can have a range of emotional, social, and professional implications. In this Thrivership episode, we navigate some of the considerations of this process and also talk with a few people living with neuroendocrine cancer as they share their experiences and perspectives. Watch the episode here.

The neuroendocrine cancer patients' and caregivers' voices matter to NETRF. We ask what you want to learn at KNOW YOUR NETs each year. This has resulted in NETRF's most successful NET patient conferences.

We'd like to build upon that success in 2025, but we need your help. You are the experts in living with or caring for someone with neuroendocrine cancer. You know what you want and need to learn to help you on your journey.

NETRF would like your feedback to plan another successful KNOW YOUR NETs conference. Please take 5 minutes to answer this brief survey. The survey will close on February 25.

We’re excited to announce a grant from Boehringer Ingelheim to address critical gaps in education and support for neuroendocrine carcinoma (NEC) patients and caregivers. These funds will allow us to enhance and expand our patient education resources in meaningful ways:

We’re grateful for this partnership with Boehringer Ingelheim and proud to deliver these much-needed resources to the NEC community. Stay tuned as we bring these projects to life!

Thanks to a generous grant from Harry Proudfoot and the Walking with Jane Foundation, NETRF is launching the Pay It Forward Pilot Project. This initiative empowers patients to educate their healthcare providers about neuroendocrine cancer, to improve awareness and early detection. Here’s how it works:

This initiative extends the reach of the patient guide to primary care physicians, especially in areas with limited access to neuroendocrine specialists. By fostering these connections, the Pay It Forward project will help improve awareness, early detection, timely intervention, and better patient outcomes.

If you do not have a NET patient guide, you can request one here.

We are grateful to Harry Proudfoot and Walking with Jane Foundation for supporting this vital project. Stay tuned for more updates!

We’re thrilled to announce our amazing supporters who are hosting fundraisers in 2025 to fuel life-changing research for neuroendocrine cancer. From walks and golf tournaments to community events, there are so many ways to get involved and make an impact.

Find a local event near you and join us in supporting groundbreaking research that leads to better treatments and hope for patients and families. Together, we’re making a difference!

Do you want to host an event this year? Contact Steve Perna for more information at steve.perna@netrf.org.

March 1 - Toledo, Ohio: 
Register Now: The CureNET Project's 3rd Winter Dinner 

September 20 - Fair Oaks, CA - "A Night for Sheryl"

Your generosity in 2024 made groundbreaking research possible—and we’re just getting started. As we launch new, innovative projects this year, your ongoing support is vital to driving discoveries that lead to better treatments and cures for neuroendocrine cancer.

By becoming a monthly donor, you ensure we can sustain this momentum, funding life-changing research every step of the way. Start 2025 strong by joining our community of dedicated supporters who are transforming hope into action.

Make a monthly gift today at netrf.org/give.
Thank you!

NET Research Foundation
31 St. James Avenue
Suite 365
Boston, MA 02116
(617) 946-1780 info@netrf.org

The mission of the Neuroendocrine Tumor Research Foundation is to fund research to discover cures and more effective treatments for neuroendocrine cancer. NETRF is the largest global funder of neuroendocrine research and a preeminent resource for expert patient education and support.



NETRF is a 501(c)(3) organization. All donations are tax-deductible to the extent allowed by law.