Register for KNOW YOUR NETs Virtual Conference!
We hope you will join NETRF and UChicagoMedicine for KNOW YOUR NETs, our virtual education conference for patients and caregivers on November 7. Our conference focuses on the topics YOU told us you wanted to learn more about, including treatment sequencing, managing symptoms, complementary medicine, “NETs 101” for the newly diagnosed, and the latest in treatment and research. Join Elyse Gellerman, Dr. Xavier Keutgen, and our expert speakers for this free conference. You can view the full agenda here.
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Brad's Living Legacy
Brad Novak was a devoted family man and an incredibly talented custom home builder. Brad spent most of his life building dream homes for others, but after his NET diagnosis, he set out to build his dream home for his beloved family.
Brad passed away a few months before the home was finished, but his family and friends joined forces to complete Brad's dream home. You can watch Brad's story here. To support NETRF in Building Better Futures for NET patients, please donate below.
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Dr. Parijat Senapati
Dr. Senapati, a scientist at City of Hope’s Beckman Research Institute, is studying pancreatic NETs with ATRX/DAXX genetic mutations. Dr. Senapati is the recipient of a NETRF Mentored Award to support early-career scientists. Meet Dr. Senapati and hear how her study may help identify diagnostic or prognostic markers to target PNETs, in this video.
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Clinical Trial of Lutetium in LungNETs
A new phase II clinical trial will evaluate the effects of Lutetium 177 (Lu 177) dotatate in patients who have somatostatin receptor-positive advanced bronchial neuroendocrine tumors.
Thomas Hope, MD, of the University of California, San Francisco, and Suki Padda, MD, of Cedars-Sinai Medical Center, are the principal investigators of the study, which compares progression-free survival, overall survival, and the overall response rate of Lu 177 dotatate compared to the standard treatment with everolimus. (READ MORE)
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| Dr. Pam Kunz named Woman Oncologist of the Year
NETRF congratulates Dr. Pam Kunz, who has been named Woman Oncologist of the Year by Women Leaders in Oncology. Dr. Kunz is Associate Professor of Medicine, Director of the Center for Gastrointestinal Cancers at Smilow Cancer Hospital and Yale Cancer Center, Chief of GI Medical Oncology and Vice Chief of Diversity, Equity and Inclusion for Medical Oncology. She is recognized for her leadership in NET patient care, research, and diversity.
“I am honored to receive this award because it highlights the important work women are doing in oncology research, patient care and leadership,” said Kunz. “This award is also a clear statement that my work in creating a more respectful, inclusive and collaborative work environment in medicine matters.”
Dr. Kunz is a past NETRF grantee and has served as a grant reviewer. She has been a frequent speaker at NETRF patient education conferences. Thank you, Dr. Kunz, for all you do for NET patients and for supporting and advancing the important role of women in oncology.
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NETWise Episode 16: NETs and Nutrition
If you missed the latest episode of NETWise on NETs and Nutrition, this may be a great time to listen. As we approach Thanksgiving dinner and holiday gatherings, NETWise takes a close look at the relationship between food and neuroendocrine tumors. There are many ways that food can improve or aggravate symptoms. Hear practical advice from medical experts and patients who have identified their food triggers and not given up all the foods they love. (LISTEN NOW)Then take the NETWise Quiz from LACNETS to test your knowledge.
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Moonlight Walk 2021 Update“When I participate in the run…..I feel very connected to my mom. I imagine her running by my side and encouraging me….” ~ Alana Firsty.
Read about the California family's successful moonlight walk/run to support NETRF here.
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Welcome Christine Coffey! We are pleased to share that Christine Coffey joined NETRF as our new Director of Communications. With more than 20 years of professional experience in non-profit marketing and communications, Christine revels in crafting exceptional story-telling that inspires and motivates the reader. Christine has extensive experience in healthcare communication and particularly enjoys helping patients and their families share their journeys. She led communication teams at Boston University School of Dental Medicine, Spaulding Rehabilitation Hospital, Tufts University Health Sciences Campus, MASCO (Medical Academic Scientific Community Organization of Longwood Medical Area) and Catholic Charities. She holds a master's degree in journalism from Boston University College of Communication, where she is also a part-time adjunct professor. You can reach her at Christine.Coffey@netrf.org.
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| SPECIAL THANKS TO ADVANCED ACCELERATOR APPLICATIONS, A NOVARTIS COMPANY,FOR SPONSORING THE OCTOBER EDITION OF NETRF'S eUPDATE.
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