CERN Inspiration Story
Kylie’s blog, Sienna’s Hope, documents her daughters journey with anaplastic ependymoma. This has helped her cope, but she also wanted to share her blog with other families facing the same battles.
As people know from my previous posts that Sienna’s initial MRI scans post treatment have indicated Sienna is tumour and cancer free. Apart from a recent visit to the hospital with headaches, Sienna is a picture of health and happiness.
So where to from here?
Sienna will require three monthly MRI’s for the next two years. Ependymoma’s are notorious for growing back so Sienna will require close monitoring for the next couple of years. I do hope the MRI’s get easier to tackle, but from what I can understand from talking to other families who go through the same ordeal, it does not. The lack of sleep, the constant feeling of dread and all of us being extra grumpy was all part of the week leading up to Sienna’s scan and appointments. Sienna’s next scans are booked in for November and we are already planning something as a family unit to distract us a couple of days out from the scan.