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Bake Shop Owner Helps a Family in Need

Ependymoma Treatment

Learn how you can help care for yourself or a loved one during and after treatment for ependymoma.

For more information, download a copy of the Ependymoma Guide, CLICK HERE.

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Cameron's Family

A Sweet Gesture Goes a Long Way

Maria Kauflin’s sixteen-year-old nephew, Jason, was being treated for lymphoma in a local hospital in Dayton, Ohio. Cameron Neal was also getting treatment there. 

Cameron was also from Dayton. On April 6, 2010, Cameron was diagnosed with anaplastic ependymoma, along with Von Willebrand disease, which is a condition that can cause extended or excessive bleeding. He had his first brain surgery a few days later to remove a softball-sized tumor from his brain leaving him with partial paralysis on the right side of his body. Cameron received proton radiation. The family was informed that all of Cameron’s tumor had been removed and the outcome was hopeful, leaving everyone with a huge sigh of relief.

Maria would cross paths again with the Neal family at a fundraiser for the Leukemia and Lymphoma Society. Jason and Cameron’s family came to help. “I was so struck by how Cameron’s parents helped out while they were going through this,” shares Maria.

Sienna's Hope

CERN Inspiration Story
Kylie’s blog, Sienna’s Hope, documents her daughters journey with anaplastic ependymoma. This has helped her cope, but she also wanted to share her blog with other families facing the same battles.
Emotional Baggage - September 30, 2015
As people know from my previous posts that Sienna’s initial MRI scans post treatment have indicated Sienna is tumour and cancer free. Apart from a recent visit to the hospital with headaches, Sienna is a picture of health and happiness.
So where to from here?
Sienna will require three monthly MRI’s for the next two years. Ependymoma’s are notorious for growing back so Sienna will require close monitoring for the next couple of years. I do hope the MRI’s get easier to tackle, but from what I can understand from talking to other families who go through the same ordeal, it does not. The lack of sleep, the constant feeling of dread and all of us being extra grumpy was all part of the week leading up to Sienna’s scan and appointments. Sienna’s next scans are booked in for November and we are already planning something as a family unit to distract us a couple of days out from the scan.
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