pALS Newsletter - Summer 2022
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| Team Gleason is growing! We’ve been busy the first half of this year. We've added Richard, Mollie, and Mary to our Technology and Equipment Team. Additionally, we've hired on Jamie, our Events and Development Associate, and Kristi, our newest CRM and Development Associate.
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We are currently undergoing an office renovation so we can make more space for our growing organization. Since January, our team has received 2,838 service requests and has shipped over 450 items to pALS!
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MEET OUR NEW MANAGING DIRECTOR
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David Darragh joins Team Gleason as Managing Director, overseeing day-to-day operations and optimizing organizational structures. After a tenured career leading food manufacturing and marketing companies, David felt the call to pivot to a more mission-driven organization.
David feels energized while working closely with and supporting the growth of his team members. He is excited by the bold goals of Team Gleason and the work they do to empower those living with ALS.
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MEET THE NEWEST TECHNOLOGY
AND EQUIPMENT TEAM MEMBERS
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Inspired by Steve’s story and the work Team Gleason does, Mollie is thrilled to join Team Gleason as a Technology and Equipment Associate. With previous experience as a certified nursing assistant and as a caregiver, Mollie is passionate about working each day to ease the stress of people living with ALS and their families.
“I’ve witnessed first hand people struggling to live productive and independent lives because of the lack of resources provided to them. The programs Team Gleason provides for people living with ALS are exceptional.”
Mollie is excited to expand her knowledge of accessible solutions and looks forward to forming lifelong connections within the foundation.
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Mary’s experience as a special education teacher led her to develop a deep interest in promoting accessibility for others. Working with students with limited verbal communication and motor skills helped guide her to her role as a Technology and Equipment Associate.
Building relationships with the ALS community is important to Mary. She enjoys assisting those living with ALS and their caregivers, especially learning and understanding their unique needs and finding accessible solutions.
Mary believes that everyone has the right to independence, and she is proud that her work with Team Gleason truly enhances the quality of life for others.
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The Team Gleason staff enjoyed visiting with New Orleans area
pALS, cALS, and friends for a Christmas in July lunch at Port Orleans.
It's always great to visit and make new memories!
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2022 ESPN SPORTS HUMANITARIAN AWARDS
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Steve Gleason will be one of three former athletes honored with the Stuart Scott ENSPIRE Award to be presented at the 2022 ESPYS on July 20th.
The ESPN Humanitarian Awards are presented to athletes who make a positive impact in their communities and throughout the world. Gleason will be joined by tennis player Chris Evert and basketball player Dikembe Mutumbo in receiving the honor.
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"Team Gleason has made an incredible difference in the life of our father and grandfather, Giuseppe. This chair gave him back a huge part of his independence, allowing him to move freely around the house."
- Enrico
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*Giuseppe’s brand new power wheelchair with seat elevator was delivered in partnership with Numotion.
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SEM AND LUDA' FLORIDA ROAD TRIP
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"My husband Sem was diagnosed with ALS in March of 2014. He has lost so much in the last 8 years but this horrible disease cannot take away his spirit! Team Gleason’s motto “No White Flags!” is exactly how Sem approaches things as well!
After he was diagnosed, we decided to live life fully as much as possible. We continue to go on adventures by going on short road trips in our van around California, but due to Sem’s worsening condition we never thought it would be possible to go across the country to visit family in Florida! Sem did not think he would be able to see his aging aunt again but thanks to the incredible generosity of Team Gleason he was able to!"
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Never too early to bank your voice
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While Don doesn’t need the voice banking yet, knowing that his family is prepared for that moment is an important step they took.
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Marcus gets a chance to hug his mom after 9 years
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Marcus hasn't seen his mother since before his ALS diagnosis in 2013. All he wanted for the past nine years was to see his mother, who had just turned 93 years old and hug her.
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Giving back to
those who care
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Team Gleason joined together with the Edward Jones branch located in Anchorage, Alaska, to work on a special project for the ALS caregiving community.
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Join our next Team Gleason Virtual Zoom Gathering for both those living with ALS and their caregivers. We are inviting everyone - no matter where you live! First Thursday of Every Month at 12pm CST.
Need Additional Support?
First Wednesday of Each Month | 8pm CST: A gathering focused on adult children of persons living with ALS
First Thursday of Each Month | 1pm CST: A gathering focused on wives of men living with ALS
If you would like to be invited to participate, please email kelly@teamgleason.org.
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| CHOOSE TO REUSE! To return or donate equipment please contact returns@teamgleason.org so we can best assist with the logistics of the return or donation.
If we are able to accept the donation then Team Gleason will email prepaid shipping labels for the boxes.
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SUBMIT YOUR STORY! Have a story, photo, video, or something else that documents your ALS journey, shows off your unique talents, or highlights how you are utilizing technology and equipment? Email Kacie.Banegas@TeamGleason.org to be featured.
Do other family and friends want to receive the pALS Team Gleason newsletter?
Simply forward this email to them and have them click the button below to subscribe!
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