Stay up to date with the latest news, events and happenings at the Coalition
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If you're attending the American Society of Nephrology (ASN) Kidney Week in October, we look forward to connecting with our members and ExPAND participants following these sessions:
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Including presentations by Drs. Sara Davison and Ann O'Hare
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Including presentations by the following and moderated by Dr. Alvin (Woody) Moss
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The ANNA Nephrology Nursing Summit was a huge success in Atlanta, GA! |
Dr. Christine Corbett presented on the Key Role of Nurse Practitioners in Providing Kidney Supportive Care Enhancing Patient Outcomes and Quality of Life at the American Nephrology Nurses' Association (ANNA) Nephrology Nursing Summit and her conclusions are included below.
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Congrats to Glenda Harbert for presenting at the RHA Annual Conference |
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Congratulations to ExPAND National Advisory Board co-chair and Coalition executive board member Glenda Harbert who presented Supportive Care for ESKD patients: Lessons Learned to approximately 150 attendees of the Renal Healthcare Association (RHA) Annual Conference in Las Vegas, NV on 9/18/24.
The presentation included Shared Decision Making and lessons learned from the Pathways Project. The ExPAND project was introduced and the patient video was viewed by attendees.
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Meet Nichole Jefferson, ExPAND's Patient Advisory Group Co-Chair |
Nichole Jefferson, a risk management and compliance analyst for Wells Fargo, currently resides in Dallas, Texas. When diagnosed with end-stage renal disease in 2003, not only was she unaware of what it meant, she had no idea she was at high-risk for developing kidney disease. Though Nichole experienced both forms of dialysis (HD and PD), she preferred the convenience peritoneal dialysis offered. On June 12, 2008, she received the gift of life, a kidney transplant. Due to the many obstacles she faced following her transplant, Nichole realized that a transplant was simply another form of treatment and not a cure. This realization sparked her quest for knowledge, which later initiated her enthusiasm for advocacy. This enthusiasm and advocacy is what assisted Nichole in her fight for her second transplant which she had on April 24, 2024.
Nichole's enthusiasm for advocacy increased even further when she realized that not many people understood the prevalence of kidney disease in the Black community. This discovery encouraged her to seek additional knowledge to share with her community and underserved populations. Soon thereafter she began speaking with legislators regarding the need for early detection and other issues relating to chronic kidney disease. Nichole has participated in numerous opportunities to engage in the renal community, enabling her to expand her resources and share her kidney journey with others. Nichole continues to advocate for her own health and provide awareness to others.
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Thank you to all our Nephrology Nurses and Nurse Practitioners! We value your contribution to our patients and the nephrology specialty. Photo courtesy of ANNA.
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Palliative Care in Nephrology |
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Palliative Care in Nephrology
textbook is available for purchase
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Principles of Trauma-Informed Care |
During the next several newsletters, we will explore the Principles of Trauma Informed Care:
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Above graphic is from the Guiding Principles of Trauma-Informed Care
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Explore the KDARC Research Grant Opportunity |
The "Kidney Disease Aging Research Collaborative (KDARC) Research Infrastructure to Advance the Science of Geriatric Nephrology” grant received NIA funding. Led by Dr. Mara McAdams DeMarco (NYU) and Dr. Rasheeda Hall (Duke University), this grant will establish the necessary research infrastructure to stimulate new interdisciplinary research in kidney disease and aging by leveraging existing datasets, formalizing new data collection for preliminary data, and investing in the career development of its members.
For more information and to get involved contact Ilana at ilana.mittleman@nyulangone.org.
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Wong, SPY. et al., (2024). Providers' experiences discussing care for patients with kidney failure who forgo kidney replacement therapy: A national qualitative study https://journals.lww.com/cjasn/abstract/9900/providers__experiences_discussing_care_for.428.aspx
A qualitative study was conducted using interviews with a national sample of nephrology providers (i.e., physicians and advanced practice providers) who participated in US professional societies between July and December 2022. A thematic analysis of interviews to identify emergent themes reflecting providers’ experiences discussing care for patients who forgo kidney replacement therapy (KRT). Three dominant themes emerged from interviews: 1) Inconsistent terminology, 2) Blurred distinctions, 3) Deciphering patients’ decision to forgo KRT. Providers used different, inconsistent terms to describe care for patients who forgo KRT. They disagreed about what this care entailed and were uncertain about what patients might mean when they express not wanting to undergo KRT.
Span, P. (2024). Dialysis May Prolong Life for Older Patients. But Not by Much https://www.nytimes.com/2024/09/01/health/dialysis-seniors-kidneys.html?unlocked_article_code=1.JU4.O-rK.VVw2CMgXm0bM&smid=em-share
In one recent study, the challenging regimen added 77 days of life after three years. Often, kidney disease can be managed in other ways. It still often falls to patients themselves and their families to question whether they want to start dialysis, to ask about other options like conservative kidney management, and to weigh their choices. If they’re waiting for health care professionals to alert them to the alternatives, that they may have to wait quite a while.
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| Share Your News in the Coalition Update |
Do you have news or events that you would like to share? Please email christine.corbett@gwu.edu for inclusion in the next Coalition Update!
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The Coalition for Supportive Care of Kidney Patients (CSCKP) aims to create a culture change that transforms kidney disease care, putting the patient at the center of care, through the integration of palliative approaches and practices. If you would like to donate to the Coalition to support our Kidney Supportive Care efforts, please see below:
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Join The Coalition Mailing List |
Join the Coalition's over 700 members in transforming the culture of kidney care around the globe. Sign-up for Coalition Updates and share with anyone who might have an interest in our work.
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Follow the Coalition for Supportive Care of Kidney Patients
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