May 2, 2016 - Ependymoma Awareness Day!
May 2, 2016 - Ependymoma Awareness Day!
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Ependymoma Awareness Day is May 2, 2016!

Contact Your Local Officials!

You can create awareness of ependymoma where you live!
In the past, we were honored that Ependymoma Awareness Day was officially recognized by numerous municipalities around the world, including:
Colorado, Illinois, Indiana, Massachusetts, Michigan, Missouri, New Hampshire, New York, North Carolina, Ohio, Oregon, Pennsylvania, Tennessee, Texas, Virginia, Wisconsin, Harford County, Montgomery County, Shelby County, Trigg County, Washington DC, Austin, Chicago, Cincinnati, Columbus, Dayton, Detroit, Eureka, Happy Valley, Houston, Ithica, Los Angeles, Madison, Memphis, Palo Alto, Pittsburgh, San Diego, Santa Barbara, Seattle, Sunnyvale, Texarkana, Toronto, Chapel Hill, Schaumburg.
Make sure your town is included on this list in 2016! 
You can download a sample proclamation and sample letter asking your officials to recognize Ependymoma Awareness Day!

Get Involved and Make A Difference

Now in its fifth year, this campaign is an international effort from the CERN Foundation in partnership with medical professionals, patients and caregivers from around the world. Together, we have designated May 2, 2016, as Ependymoma Awareness Day!
The CERN Foundation is pleased to announce that this year the Ependymoma Awareness Day is included as a part of the National Brain Tumor Society’s Head to the Hill in Washington, DC!
The CERN Foundation is honored to be a part of this two-day event, held on May 2-3, at which brain tumor advocates from across the country descend on our nation’s capital to share their stories and advocate for public policy issues that are important to the brain tumor community.
CERN encourages all those who support the ependymoma cause to attend the 2016 Head to the Hill event! Together we can drive the agenda forward for better treatments, stronger research, and ultimately a cure. Register to participate. 

Butterfly Release

The CERN Foundation will commemorate Ependymoma Awareness Day with a mass butterfly release that will take place on May 2 during the Head to the Hill activities. The butterfly release will be video-taped and posted on the internet so that supporters unable to attend Head to the Hill can participate and share in this moving occasion. View the 2015 Ependymoma Awareness Day butterfly release.
We ask that you encourage those you know to purchase a live butterfly (or several butterflies!) that will be released during the awareness day ceremony!

Create Awareness Where You Live!

On a local level, we urge you to participate in an ependymoma awareness activity, helping to create a greater understanding of the disease.
You could support awareness in the following ways:
  • Share information on ependymoma with another person who has never heard of it!
  • Tell your doctor and healthcare providers about Ependymoma Awareness Day!
  • Document your awareness efforts on your Facebook page, Twitter account or blog and use the hashtag #CERNbutterfly!
  • Educate colleagues, co-workers, school groups and congregations!
  • Order and wear an ependymoma awareness lapel pin!
  • Release white butterfly balloons with the CERN awareness butterfly logo printed on them!
  • Seek recognition from your local government or ministry of health!
  • Raise funds to help with research!
  • Create your own Awareness Day event!
For more ideas, read how others around the world have commemorated Ependymoma Awareness Day. For more information, contact us.

You can download the Awareness Kit as a guide to help you promote greater awareness of ependymoma both internationally and in your local community!

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CERN Foundation PO Box 217 | Zionsville, IN 46077 US
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