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THE COLORADO 

BLOODLINE
news from your local nonprofit for all bleeding disorders
Quarter Two Newsletter
April 30th, 2020
PROGRAM & EVENT CALENDAR

A Note from Your Executive Director


It was a thrill for me participate in my first Washington Days event this past February, along with more than 450 people from across the nation – including 18 from right here in our Colorado Chapter. Going into the event, I was really inspired by the high number of our community members who dedicated this time to some long days and a lot of walking to advance issues important to the bleeding disorder community.  But that inspiration paled in comparison to the excitement I felt as the days unfolded, as I saw families studying on issues and persuasively making the case to legislators – and doing it all TOGETHER. We ate our meals together, sat for meetings together, walked across Capital Hill together, and even did some off-hours sightseeing TOGETHER.

I couldn’t help but reflect on this feeling as we have confronted the COVID-19 virus over the past 2 months. This is a public health crisis the likes of which we’ve never seen, but I know we will succeed in this adversity TOGETHER. There is a lot we can’t control, but we can control how we strategize and adapt amid this new reality. We will be reaching out often to get your perspective, and we want you to know the Chapter is here for you. If you find yourself struggling, reach out to us. We have a wide range of resources that can help you in hard times, and it is important for us to play an active role in community wellness. Let’s use this experience to increase our communication and move forward more precisely and powerfully than before.

Together in health,

Perry Jowsey

UPCOMING EVENTS


May 6th: Bleedership Workshop
May TBD: Game On-Teen program presented by Bayer 
May 19th: Tuesday Tea Time-Women's program presented by NHF
June 5th: Virtual Family Campfire!

BLEEDERSHIP INSTITUTE WORKSHOP 

Wednesday, May 6th 12:00PM

Are you ages 19+ looking for an opportunity to reconnect with your bleeding disorder community? Join us May 6th for a Bleedership Insittute Workshop where we will get to know one another with fun and hands on team-building activities. Build your leadership skills and serve as a mentor to the youth in the community.
Join us NEXT Wedneday for this workshop with pizza! 
Bleedership Institute Workshop

LOOKING TO CONNECT?

Are you new to Denver or the Bleeding Disorder Community or interested in connecting with someone who is?
The Connections Program is designed to connect families together, where new families can learn from more experienced families about living with a bleeding disorder.  
NHF CO Consent to Contact Form
MyBDC is a community-powered registry that will provide a 360-degree view of what it means to live with a bleeding disorder as reported directly by persons affected and their immediate family members. MyBDC will help researchers identify the community’s research priorities and encourage participants to become active partners in their healthcare. 
For more information or to get involved follow the button below! 
My BDC Information

UNITE YOUR WAY

Turn your passion into a fundraiser! Unite Your Way helps turn your creativy in your hobbys, sports or races to support the bleeding disorder community. 
Find out how to host your own mini fundraiser by the button below!
Unite Your Way

WORLD HEMOPHILIA DAY CELEBRATION

On April 17th we celebrated. 
On April 17thThere was a diverse panel of individuals with different backgrounds that brought you a range of different information.  
"Loved the variety. From the basic nuts and bolts to advocacy in a box to some of the high level advocacy efforts at a national level!" -Anonymous 
World Hemophila Day Celebration Recording

Disclaimer

The medical information in this newsletter is for information purposes only and is not to be taken as medical advice. If you have any questions or concerns always consult with your medical provider. 

FAMILY CAMP WILL BE POSTPONED INDEFINETLY FOR 2020

It is with a heavy heart that NHF Colorado has decided to postpone Family Camp indefenietly for 2020 due to the COVID-19 outbreak. The chapter is adhering to public health guidelines that it is in the best interest of the community’s safety to not gather a large group of inidividuals together at this time.

June 5th
6:00pm

Enjoy family fun over this virtual fire with real pizza and connections! 


Though we will not be able to gather in person, we will instead come together VIRTUALLY for a Family Campfire! Join us Friday, June 5th at 6:00pm for a two hour family camp program with pizza! Don't miss out on singing your favorite camp songs, playing fun camp games and of course, campfire s'mores! The bleeding disorder community will come together to ignite the flame.

VISIT THE LINK BELOW FOR MORE ON THE VIRTUAL FAMILY CAMPFIRE

VIRTUAL Family Campfire Registration

TUESDAY TEA TIME

 

MAY 19TH

7:00PM
FOR WOMEN 18+


During these uncharted waters we invite the women in the bleeding disorder community to join together virtually and connect. Let's talk about the areas that cause the most stress may change in different phases of your life. During this interactive workshop sponsored by NHF, you will get the chance to identify and talk about these areas with one another and given tools on how to manage this stress so that you not only survive, but thrive!

Dust off your favorite top hat and join us! For caregivers, carriers, directly affected and/or siblings, this is an opportunity for women to come together and feel safe.

Register today and you will receive your Tea Time box! In the box you will receive decaffinated tea, biscuits and more!
Tea Time Event Registration

2020 MILE HIGH SUMMER CAMP

Even though many bleeding disorder chapters and camp-related organizations around the country have proactively cancelled camp activities for the duration of 2020, the Mile High Summer Camp has not yet made a final decision. We are monitoring data and trends on a daily basis and hope to have a final decision in the next 2 weeks. Help us learn more about your feelings by taking the survey below.
CAMP 2020 SURVEY

"GAME ON"

SPONSORED BY: BAYER
A virtual event for teens 14+ 

Date To Be Announced Soon
We are challenging ALL teens to join us as we level up and start taking control of the game. Come together for an evening connecting with other young adults in your community as we talk about tips on personal accountability, staying healthy, planning for college and more. All the grown up stuff they need to know as they move towards adulthood. And all without parents standing over their shoulder.
Join together with teens across the state of Colorado for this fun and engaging evening! After we level up in game on we will spend time connecting, engaging and having fun with one another. 

Register today! 

Game On! Leadership Event Registration
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