Get involved for Ependymoma Awareness Day! Here's how.
Get involved for Ependymoma Awareness Day! Here's how.
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Create Awareness Where You Live!

Image. A woman stand admiring a butterfly on her hand at Ependymoma Awareness Day.

Changing Ependymoma Outcomes Together!

Now in its 10th year, this campaign is an international effort from the CERN Foundation and the National Brain Tumor Society in partnership with medical professionals, patients, care partners, and other advocacy groups from around the world. Together, we have designated May 10, 2021 as Ependymoma Awareness Day as a part of Brain Tumor Awareness Month.
Join the CERN Foundation and the National Brain Tumor Society during Brain Tumor Awareness Month to commemorate the 2021 Ependymoma Awareness Day! This year Ependymoma Awareness Day will be held on May 10 to represent the 10 different molecular groups of ependymoma. Held every year since 2012 as a global advocacy event, Ependymoma Awareness Day highlights the importance of an accurate diagnosis and the urgent need for better targeted treatments.
Ependymoma Awareness Day (EAD) was established in 2012 by the CERN Foundation as part of a global effort to shine a light on this poorly understood disease. Our goal with Ependymoma Awareness Day is to increase public recognition of this rare tumor and the urgent need for more clinical studies to improve diagnostic methods, develop better targeted treatments and improve outcomes for those living with this disease.
On Ependymoma Awareness Day, butterflies around the world are released to honor loved ones with ependymoma, recognize care partners and medical workers, and to support ependymoma research efforts. The delicate and beautiful butterfly was chosen to represent the spirit of the ependymoma community as a symbol of hope through change.
The CERN Foundation will commemorate the 10th annual Ependymoma Awareness Day with a live streamed virtual event that will take place on May 10, 2021 at 1PM EST on the CERN 2021 EAD website and Facebook Live. The 30+ minute program will feature educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and will conclude with a butterfly release.

Create Your Own Awareness Activity!

From home, we urge you to participate in an Ependymoma Awareness activity, helping to create a greater understanding of the disease.
Participate in Your Own Awareness Day activity!
Create your own butterflies to display in your neighborhood or take a photo and share on social media.
  • Color a butterfly using our coloring sheet.
  • Chalk butterflies on your driveway with encouraging messages.
Share your awareness activities on your Facebook page, Twitter account or blog and use the hashtags #CERNbutterfly and #epENDymoma. For more ideas, read how others around the world have commemorated Ependymoma Awareness Day. For more information, contact us.
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Show Your Support!
The CERN Foundation, a program of the National Brain Tumor Society, is currently engaged in a range of community outreach programs and support efforts designed to have a positive impact on the lives of children and adults living with ependymoma, as well as their families and caregivers.
Please consider supporting our efforts by making a donation or creating your own online fundraising campaign.
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