Ependymoma Awareness Activities Across the World!

Image. Participants at Ependymoma Awareness Day hold beautiful butterflies and are about to release them into the air.

Official CERN 2021 Ependymoma Awareness Day Virtual Program

The CERN Foundation, a program of the National Brain Tumor Society, commemorated the 2021 Ependymoma Awareness Day event with a virtual program that included educational and awareness content from CERN Advisors and Members, historical clips from previous EAD events, key issues from the ependymoma community, and concluded with a butterfly release. Thousands of people from all over the world viewed and shared the virtual program in an effort to raise awareness about ependymoma. Thank you for your support in making this online event a success!

Feedback from the community included:

"I watched and thought - if only THIS is what people would see when they Google 'ependymoma'!!! Such great information!"

– Beth

"Thank you for such a lovely event. I was in tears throughout the whole thing - just beautiful."

– Patti

"My heart was in my throat through all of this. To see researchers around the world studying ependymoma to better understand it and to look at new therapeutic options, is a huge boost to our hope. Thank you for everything you do - I cannot underscore how important it is to our family!"

– Rachel

Highlights:

The first three educational videos feature previous CERN Fellowship Recipients, a prestigious award given to young investigators to conduct ependymoma research and encourage an interest in ependymoma work. Robert Connor Dawes Foundation is a prominent partner in the fellowship program. Watch the program.

Highlight 1: Behind-the-Scenes Ependymoma Lab Tour

Kids Interview Dr. Vijay - What is ependymoma?

An interview hosted by ependymoma survivors with Dr. Vijay Ramaswamy, 2016 CERN Scientific Fellowship Recipient, from SickKids in Toronto, Canada gives an overview of the rare disease with a personal touch.

Watch now.

Behind-the-Scenes Ependymoma Lab Tour

Join Dr. Claire King, 2018 CERN Robert Connor Dawes Pediatric Fellowship Recipient on a behind the scenes tour of the Gilbertson Group lab at Cambridge and learn about the intricate work of performing molecular diagnostics for ependymoma.

Watch now.

Ependymoma Molecular Groups Explained

Dr. Kristian Pajtler, 2018 CERN Scientific Fellowship Recipient, from KiTZ Hopp Children’s Cancer Center in Heidelberg, Germany, gives a patient friendly presentation on the recent advancements made on the ependymoma molecular groups and why this is important to the ependymoma community.

Watch now.

Image. Icons of heart, head, support, and exercise - all things needed for self care.

Awareness Outreach Report

In a groundswell of international support, patients, care partners, medical professionals and advocates participated in a variety of events marking May 10, 2021 as Ependymoma Awareness Day.

Collectively, these events helped to create a greater awareness of ependymoma and garnered momentum from around the world.

Read the 2021 Ependymoma Awareness Day Outreach Report.

Support the Ependymoma Fund for Research and Education

With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Under “Direct My Gift to Support,” remember to select the Ependymoma Research and Education Fund.

Make A Gift

The CERN Foundation and the National Brain Tumor Society have joined forces to help people with ependymoma and advance ependymoma research toward the development of new and better treatments through the creation of the Ependymoma Fund for Research and Education. Today, the CERN Foundation is officially a designated program of the National Brain Tumor Society. Donations to the Ependymoma Fund for Research and Education will be made on the NBTS website and used to support research efforts that will benefit both ependymoma patients and research through CERN. Emphasis will be placed on CERN’s historical model of supporting work that translates basic science into clinical practice. The Fund will also address overcoming barriers to clinical trial accrual and the development of new clinical studies for ependymoma patients. Additional funds will be used to support educational efforts through print, media, and awareness events. The new collaborative Ependymoma Fund will continue CERN’s practice and tradition of involving and collaborating with other scientists, medical providers, foundations and supporters of ependymoma research.

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CERN Foundation PO Box 217 | Zionsville, IN 46077 US