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CERN Foundation at the Annual SNO Meeting

Diane Hotchkiss

Hotchkiss Insurance  Held “No Shave” Fundraiser

Hotchkiss Insurance in Houston, TX held a “No Shave” contest and fundraiser for the month of November to support Diane Hotchkiss and raise funds for the CERN Foundation. All male employees who wished to participate grew November. All beard participants and employees solicited donations and raised over $16,000 for the CERN Foundation!

Diane is a loving wife, mother of four beautiful children, sister, daughter, and friend to many. On June 17, 2015, she was diagnosed with a large brain tumor. This diagnosis followed several weeks of building symptoms that includes blurred vision, dizziness, plugged ears, swallowing difficulty and headaches.  Shortly after, she had the tumor removed at MD Anderson Cancer Center, a participating CERN center.


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CERN Foundation 2015 Annual Meeting

The CERN Foundation held a productive meeting on November 20, 2015. Thirty investigators from across the CERN network participated in a lively yet informal sharing of information on a broad range of ependymoma topics. The meeting was held concurrently with the 2015 Annual Meeting of the Society for Neuro-Oncology (SNO).
Key members of the CERN Foundation leadership provided updates on CERN’s ongoing awareness and outreach work, the clinical trials efforts as well as status reports on CERN’s outcomes research projects.
During the meeting, the CERN Foundation announced that Vijay Ramaswamy, PhD, has been selected as the first CERN Basic Science Ependymoma Research Fellow.
Vijay will be working in Dr. Michael Taylor’s lab at the University of Toronto with the goal of advancing the science of ependymoma.

CERN Supported Research at SNO

Researchers supported by the CERN Foundation were well represented at the meeting, which had a record attendance of over 2200 registrants. 

Alvina Acquaye

The Adult Ependymoma Outcomes Project 
Understanding the disease presentation and experience of patients remains an uncharted domain for patients with rare tumors. The Adult Ependymoma Outcomes Project is an online questionnaire established in 2009 that has been investing the data gleaned from this self-reported information to allow physicians to better understand this uncommon tumor. 

Dr. Eugene Hwang

Self and Proxy-reported Clinical Outcomes Assessments in a Large Cohort of Children with Ependymoma
Ependymoma is the second most common malignant brain tumor in children. Children with ependymoma frequently have prolonged treatment courses and undergo recurring cycles of remission and progression that may lead to significant morbidity. There has been increasing emphasis on the evaluation of patient-reported outcomes (PROs) in children with brain tumors. However, very few studies have examined Clinical Outcome Assesments including PROs and observer-reported outcomes in children with ependymoma.
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