Always Smiling: Meet Dontrell, a true fighter who always lights up a room
Always Smiling: Meet Dontrell, a true fighter who always lights up a room
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September is a Month for Change


Watch the recorded educational event on cIMPACT-NOW: Advancing the Molecular Classification of Ependymal Tumors

National Brain Tumor Society and the CERN Foundation hosted a virtual educational event on the new ependymoma molecular classification updates released in the cIMPACT now update 7 publication on Thursday, September 10, 2020 at 12pm. Dr. David Ellison, Chair of Pathology at St. Jude Children’s Research Hospital, and Dr. Mark Gilbert, Chief of the Neuro Oncology Branch at the National Institutes of Health, were interviewed by Kim Wallgren to help educate patients and care partners on how molecular classification is done, why it is important to the community, and explaining the recent updates involving ependymoma.
“We know for ependymoma, really important molecular advances have been made that allow us to separate out tumors that look the same down the microscope, but actually have key biological differences.”
— Dr. David Ellison, Chair of Pathology at St. Jude Children’s Research Hospital

National Brain Tumor Society (NBTS) and the CERN Foundation Announce Official Plans for CERN to Become a Designated Program of the NBTS

We are pleased to announce that the CERN Foundation will officially become a program of the National Brain Tumor Society. Building upon years of collaboration, fully integrating our organizations will further benefit the ependymoma community.

Always Smiling

By Charmaine, Dontrell’s Mom
CERN Inspiration Story

"It is imperative to find a cure for kids battling brain cancer. These kids are true warriors and are just starting their life. They deserve longevity and to live a full life."

In honor of Childhood Cancer Awareness Month, we are featuring Dontrell's story to spread awareness about ependymoma, a type of pediatric brain tumor. Dontrell experienced a delay in diagnosis, which eventually led him to Children's Hospital Los Angeles to receive multiple surgeries and treatment.

Read Dontrell’s full story.

The CCAM Toolkit: Activities for Awareness

This Childhood Cancer Awareness Month (#CCAM), you can help create change that will last a lifetime. National Brain Tumor Society has created a number of family-friendly opportunities that anyone, at any age, can participate in to help raise awareness and inspire action to advance the development of new and better treatments for our most vulnerable patients, children.
No matter your age or location, you can get creative for the cause throughout CCAM:
  • Awareness Rocks!
  • Write a Letter to Your Members of Congress
  • Book Reading with Well Beings Studio
  • Show Your Colors - Outside or Inside the Lines
  • Cookies for CCAM
  • The Future is Mindful
  • Music for the Mighty
  • Dance Like No One’s Watching

Make a gift
Support the Ependymoma Fund for Research and Education
With your generous support, we will continue to expand our efforts to improve the care and outcome of people with ependymoma. Under “Direct My Gift to Support,” remember to select the Ependymoma Research and Education Fund.
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